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  1. JCB

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    I went through this less than a year ago. They originally wanted the forms returned in the middle of the Xmas holiday. It was just as stressful as you say. A family member helped as far as their time permitted, but these forms are more time demanding than one might think. In the end no one else...
  2. JCB

    Pirate paper website Sci-Hub dealt another blow by US courts

    This is sad for us, but I don't think the legal decision is surprising. On this forum we do operate a fair use policy, allowing copying of abstracts or short excerpts, but not full articles, AIUI. So the situation with our posts is diferent to Sci-hub. I don't see Alexandra Elbakyan being able...
  3. JCB

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    But the point is, for me, and what I was considering above, is whether it is possible to put a cogent argument in that space, and whether a short response will just get put onto the other pile. I won't beat myself up. I do need to decide if my response will just become part of a box ticking...
  4. JCB

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    Just reading this thread has brought back stress from my experience of DLA to PIP conversion earlier in the year. I can think of many things to tell them about. However I have little confidence my input will make a difference. I do know that I will relive the past experience. I need to assess...
  5. JCB

    Professor Sir Simon Wessley would like your help...

    Is survey monkey really an appropriate way to investigate a matter like this? I haven't tried to respond to the survey, but it appears to be open to anyone to leave an answer whether they are qualified to or not. To me it does seem to support those who question his research skills.
  6. JCB

    Osteoporosis (bone loss)

    Perhaps they didn't eat enough apple? They only got 75g of dried fruit whereas the prunies got 100g. I though the whole point of a control group was to make such factors equal between groups. 100g of prunes is a lot, to my mind. How much is that in terms of fresh plums? I find dried fruit is...
  7. JCB

    Microbiome testing reports discussion

    TBH I have not taken a lot of notice of this subject so far, not enough to have a considered opinion, but I am aware of general discussion. Off hand I do not know how that is done. Does that involve antibiotics or other chemicals? Personally I would worry if taking out one strain will have...
  8. JCB

    WikiBooks / 2017 Wiki Fact Sheets: Exercise as it relates to Disease - ME/CFS/FM Fact Sheets 2017

    That's sad. He must be getting quite ill. It happens to too many of us. But the quoted message was back in 2009. Thanks for updating me.
  9. JCB

    WikiBooks / 2017 Wiki Fact Sheets: Exercise as it relates to Disease - ME/CFS/FM Fact Sheets 2017

    Esther12 said: ↑ https://groups.google.com/forum/#!topic/alt.med.cfs/xMjK9GbxzVM At first sight I would say that the neswgroup post that has been copied onto Google Groups is part of a Usenet discussion in a joke thread, a kind of Prisoner remake series fan-fic. Google groups is not a good way...
  10. JCB

    Using PCs versus laptops when you're mostly in or on your bed

    Have you considered a projector in place of a monitor? I have not been tempted by these, but it might help if you have a suitable wall, or if you could devise a lightweight screen (lighter than a monitor so it can be picked up and put down, and is purely passive) to take the image. I split my...
  11. JCB

    WikiBooks / 2017 Wiki Fact Sheets: Exercise as it relates to Disease - ME/CFS/FM Fact Sheets 2017

    Marc-Alexander has been around on the scene for a couple of decades. I was happy sharing forum space with him. I haven't seen anything he has posted recently as I haven't visited those places for a long time, but he seemed OK. Don't shoot the messenger.
  12. JCB

    Getting Glasses When You Have ME-related Variable Eyesight

    I've been wearing glasses since I was eight, and they started calling me prof at school. Short sight. Initially I was unusual having the same prescription for each eye and no astigmatism. Both of those things have changed over the years. I don't think this has been significantly affected by ME...
  13. JCB

    The Microbiome in Posttraumatic Stress Disorder and Trauma-Exposed Controls: An Exploratory Study

    random forest analysis? WTF? Is this some form of p-hacking or is there something more to it?
  14. JCB

    Gary Burgess Despicable ME

    There are actually a zillion ME and CFS websites. Only a few reach critical mass. Some become popular blogs. I think a site that aims purely at relating good and bad experience won't get a lot of traffic. Little of the traffic on popular sites really fits into that category. Few of use want to...
  15. JCB

    Better Science through Better Data 25th October 2017 - Esther Crawley!

    The tweets are probably few compared to the audience. Medicine has deferral to authority and ties of allegiance. Favours granted, favours wanted.
  16. JCB

    Better Science through Better Data 25th October 2017 - Esther Crawley!

    Language develops, changes are accepted, methinks yon stuff happens. There are quite a lot of words where meanings have reversed from their "correct" meaning.
  17. JCB

    Better Science through Better Data 25th October 2017 - Esther Crawley!

    Does any self respecting nutter actually make messages out of newspaper words any more? The whole point is to disguise your handwriting, to escape identification. These days if you made a letter that way it would be well coated with your DNA. I think a real letter would more likely be on A4 in...
  18. JCB

    Petition for ME Assoc. to leave CMRC

    Petitions come, petitions go. I think the MEA would take more notice of members contacting them. They are a membership based organisation. It was a membership decision that Charles Shepherd stayed and Val Hockey left. He is very popular among members. Val Hockey didn't allow for that when she...
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