Paper published with fanfare on blood-based dx test. lots of reasons this could be a whole lot of nothing--penny stock biotech, limitations due to controls, independent replication necessary, "Who?" however, quite promising if validated...
I suspect they’re not any more fond of you than they are of us. Actually I suspect most of those whose names are on this don’t know what it’s about beyond what they were told by Busse. I think one might be a CBT comrade true believer, but—and honestly this is just speculation—I’m assuming it’s...
“We looked at 900,000 Tweets going back 15 years! ME/CFS patients claim responsibility for replacing evidence-based, safe and long-proven, effective interventions with pseudoscience, all because they think there’s something wrong with having a psychological illness they perceive as physical...
Impact of the COVID-19 Pandemic and the 2021 National Institute for Health and Care Excellence Guidelines on Public Perspectives Toward Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Thematic and Sentiment Analysis on Twitter (Rebranded as X)
Iliya Khakban 1, Shagun Jain 1, Joseph Gallab...
Most of this is probably not news to most here, and this may well be fairly meaningless, but there's a connection worthy of mention.
Ranque & co-author Lemogne published the paper "Why the hypothesis of psychological mechanisms in long COVID is worth considering"...
Haven't seen this sort of unbelievably blatant cherry-picking of references in the recent past all that much. But what stands out is how they cite 'Anomalies' while, yes, omitting NICE's response, but, more egregiously, not citing the actual guideline. Of course that might lead to someone...
So, the point is that meaning shouldn't be assigned to the term 'malaise' in the medical sense that doesn't necessarily apply.
Here's the problem. PEM has become a colloquial term & would seem to be a preferred term, as far as communications, to PENE or PESE or any other more specific...
It might be semantics. But I think the more relevant aspect is that it plays a potential role when it comes to disability determinations, being specifically referred to as evidence that one might say is qualifying.
On the issue of research misconduct...there are a few pieces that I wonder...
Copied post - greyed content discusses a different topic
It might be semantics. But I think the more relevant aspect is that it plays a potential role when it comes to disability determinations, being specifically referred to as evidence that one might say is qualifying.
On the issue of...
Honestly I think the doubters will doubt. My guess is they're changing the name because its negative connotations are an albatross for them, not because they think they can hide from any accountability they'd face for mistreatment of ME or anything else, for that matter. They'd likely dodge it...
The APS held their 2024 Annual Scientific Meeting in Brighton, UK, past few days. I came upon this tweet which looks to be showing a slide that, once again, says one thing & shows another, what else is new.
I followed the hashtag and soon came across this:
Naturally, there is no mention of...
Amazing the amount of time & effort we waste especially considering how dishonest this all is, not to mention harmful. The worst part is knowing that they're so well aware that what they're doing is wrong. Even if they believe their way is the correct way, not acknowledging current guidelines...
I'd ask, rhetorically, of course, 'how/why does this still go on?' I got tired of asking that long ago, and we all know the answer, anyway. So come this August, we'll have one more genius expert authority with initials after their name that just flat-out lied on their PhD these, likely with/from...
Merged - PhD thesis
This is a PhD student thesis from the Division of Psychology & Mental Health at the University of Manchester. One of the four Supervisors is Alison Wearden, which is probably all one needs to know. They certainly don't need to read the linked 477-page full paper.
This is in the Journal of Clinical Medicine's current special issue on ME/CFS. Not sure if it's officially a CDC publication but given their involvement I'll say I'm not sure I've ever seen something like this in an MDPI journal, even taking into consideration some are better than others & we've...
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