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    Development and validation of blood-based diagnostic biomarkers for [ME/CFS] using EpiSwitch®… 2025, Hunter et al. (Oxford Biodynamics)

    Paper published with fanfare on blood-based dx test. lots of reasons this could be a whole lot of nothing--penny stock biotech, limitations due to controls, independent replication necessary, "Who?" however, quite promising if validated...
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    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    My suspicious mind says if they were it might well look something like this... https://www.droracle.ai/articles/220737/chronic-fatigue-work-up
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    Impact of COVID-19 & 2021 NICE Guidelines on Public Perspectives Toward ME/CFS: Twitter Analysis, 2025, Khakban et al (Jason Busse)

    I suspect they’re not any more fond of you than they are of us. Actually I suspect most of those whose names are on this don’t know what it’s about beyond what they were told by Busse. I think one might be a CBT comrade true believer, but—and honestly this is just speculation—I’m assuming it’s...
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    Impact of COVID-19 & 2021 NICE Guidelines on Public Perspectives Toward ME/CFS: Twitter Analysis, 2025, Khakban et al (Jason Busse)

    “We looked at 900,000 Tweets going back 15 years! ME/CFS patients claim responsibility for replacing evidence-based, safe and long-proven, effective interventions with pseudoscience, all because they think there’s something wrong with having a psychological illness they perceive as physical...
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    Impact of COVID-19 & 2021 NICE Guidelines on Public Perspectives Toward ME/CFS: Twitter Analysis, 2025, Khakban et al (Jason Busse)

    Impact of the COVID-19 Pandemic and the 2021 National Institute for Health and Care Excellence Guidelines on Public Perspectives Toward Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Thematic and Sentiment Analysis on Twitter (Rebranded as X) Iliya Khakban 1, Shagun Jain 1, Joseph Gallab...
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    Psychocorporal approach to functional somatic disorders 2024 Kachaner, Lemogne and Ranque

    Most of this is probably not news to most here, and this may well be fairly meaningless, but there's a connection worthy of mention. Ranque & co-author Lemogne published the paper "Why the hypothesis of psychological mechanisms in long COVID is worth considering"...
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    Review Functional neurological disorder, physical activity and exercise: What we know and what we can learn from comorbid disorders 2024 Boylan et al

    Haven't seen this sort of unbelievably blatant cherry-picking of references in the recent past all that much. But what stands out is how they cite 'Anomalies' while, yes, omitting NICE's response, but, more egregiously, not citing the actual guideline. Of course that might lead to someone...
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    Post-Exertional Malaise - a discussion including defining and measuring PEM

    So, the point is that meaning shouldn't be assigned to the term 'malaise' in the medical sense that doesn't necessarily apply. Here's the problem. PEM has become a colloquial term & would seem to be a preferred term, as far as communications, to PENE or PESE or any other more specific...
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    Brian Walitt and his role leading ME/CFS research at the USA NIH

    It might be semantics. But I think the more relevant aspect is that it plays a potential role when it comes to disability determinations, being specifically referred to as evidence that one might say is qualifying. On the issue of research misconduct...there are a few pieces that I wonder...
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    Post-Exertional Malaise - a discussion including defining and measuring PEM

    Copied post - greyed content discusses a different topic It might be semantics. But I think the more relevant aspect is that it plays a potential role when it comes to disability determinations, being specifically referred to as evidence that one might say is qualifying. On the issue of...
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    American Psychosomatic Society no longer "Psychosomatic?"

    :emoji_dart::emoji_trophy::emoji_medal::emoji_mortar_board::emoji_innocent:
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    American Psychosomatic Society no longer "Psychosomatic?"

    Honestly I think the doubters will doubt. My guess is they're changing the name because its negative connotations are an albatross for them, not because they think they can hide from any accountability they'd face for mistreatment of ME or anything else, for that matter. They'd likely dodge it...
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    American Psychosomatic Society no longer "Psychosomatic?"

    The APS held their 2024 Annual Scientific Meeting in Brighton, UK, past few days. I came upon this tweet which looks to be showing a slide that, once again, says one thing & shows another, what else is new. I followed the hashtag and soon came across this: Naturally, there is no mention of...
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    The NIH should create an Office of Infection-Associated Chronic Illness Research - proposed by the American Association of Scientists, 2024.

    Can't see how it would make anything worse, honestly. Although you could take that idea & run with it. Alternately, I'd suggest GG Allin.
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    Trial Report ‘The world was going ..."The experiences of women with ME/CFS living with their partners during COVID-19 lockdown in UK, 2024, Sidu-Sehmbi, Wearden

    Amazing the amount of time & effort we waste especially considering how dishonest this all is, not to mention harmful. The worst part is knowing that they're so well aware that what they're doing is wrong. Even if they believe their way is the correct way, not acknowledging current guidelines...
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    Trial Report ‘The world was going ..."The experiences of women with ME/CFS living with their partners during COVID-19 lockdown in UK, 2024, Sidu-Sehmbi, Wearden

    I'd ask, rhetorically, of course, 'how/why does this still go on?' I got tired of asking that long ago, and we all know the answer, anyway. So come this August, we'll have one more genius expert authority with initials after their name that just flat-out lied on their PhD these, likely with/from...
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    Trial Report ‘The world was going ..."The experiences of women with ME/CFS living with their partners during COVID-19 lockdown in UK, 2024, Sidu-Sehmbi, Wearden

    Merged - PhD thesis This is a PhD student thesis from the Division of Psychology & Mental Health at the University of Manchester. One of the four Supervisors is Alison Wearden, which is probably all one needs to know. They certainly don't need to read the linked 477-page full paper.
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    CDC Multi-site Study: Heterogeneity in ME/CFS Illness Measures Not Explained by Clinical Practice, 2024, Unger et al

    This is in the Journal of Clinical Medicine's current special issue on ME/CFS. Not sure if it's officially a CDC publication but given their involvement I'll say I'm not sure I've ever seen something like this in an MDPI journal, even taking into consideration some are better than others & we've...
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