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It may be beneficial to reach out to the OMF to see if they would be willing to contribute some funds to the project.

I inquired about the trial a couple of weeks ago, one of the coordinators mentioned that they only had 11 people participate so far, their goal is to recruit roughly 100. The location is very easy to get to via public transit, the trial location is set on the Upper East Side (a few blocks away...

Wouldn't be surprised if they get a visit from the alphabet boys, or slapped with a lawsuit in the future.

@TiredSam, they know exactly what they're doing. Every 6 months to a year, there is a vague update saying a cure is right around the corner that conveniently coincides with a fundraiser. The cure year was to get enough patients to buy The Puzzle Solver so it could become a NYT bestseller, before...

Here we go again...

Copied from the OMF thread Here we go again...

From Whitney's blog: Excellent! Now how about they start sharing that optimism with the rest of the world so maybe they can stop relying on Facebook fundraisers to fund their research.

For anyone interested, here is the 2020 990 form. Page 1 and 7 are a bit interesting. In summary, they pulled in $203k less in 2020 compared to 2019 while a pandemic was ravaging the globe that according to Dr. Davis 10 percent infected will see ME/CFS like symptoms. Linda T's salary went up...

@Andy, If I’m not mistaken, if you’re donating online, you can write in the comment option “DONOR RESTRICTION: X CAUSE” and that should be enough to establish a basic legally enforceable contract that your donation goes to the fund of your choice. For extra assurance, if you are donating over...

@Trish, I’m not trying to use Cort to draw any conclusions, I well understand that he is a patient trying to keep other patients updated on the latest research while striving to maintain a positive morale in the ME/CFS community. If it comes off as I’m trying to draw conclusions based on his...

My honest opinion is we're getting no where near the whole story about what's going on with the metabolic trap. Since the public introduction of the metabolic trap theory back in early 2018 it has been heavily implied countless times by the OMF and Dr. Davis that this will be a flat out cure or...

@MEMarge Yes

For the people who forgot to sign up for the OMF virtual open house. (Starts at 1400 EST)

I read over what you linked and definitely appreciate your work. I realized that mouse models weren’t the greatest way of seeing if something would translate to humans, but certainly not to the extent you laid out. The reason I suggested mice was mainly due to cost/ethics of it versus a trial on...

Wouldn't it be more cost/time effective to see if the metabolic trap works in an animal model? My thinking is you would want to order genetically engineered mice and try to induce the trap to see if they come down with ME symptoms (both fatigue & cognitive dysfunction), euthanize some and go...

Abstract The kynurenine pathway (KP) is the main path for tryptophan metabolism, and it represents a multitude of potential sites for drug discovery in neuroscience, including pain, stroke, and epilepsy. L‐kynurenine (LKYN), the first active metabolite in the pathway, emerges to be a prodrug...

[Internal Screaming]

At this point, four years into R&D of the nanoneedle, I find it extremely hard to believe that they can't find anyone to use as a comparison against ME patients. To piggyback off of what @Andy said, there is a VA (Veterans Hospital) literally a mile from his lab. I'm almost certain that he could...

Does anyone know if this is an expensive process, i.e. is this going to take years to do due to its cost?

Does anyone know how the 50 people that weren’t in the severe study were screened/selected? I know a little while back Dr. Phair was looking for whole genome sequences of anyone who suspected they had ME/CFS. Were those people used as the additional 50 people tested for the IDO2 mutation or were...