Search results

  1. H

    Anyone any experience with probiotics?

    I had a very bad experience with symprove. Initially felt like you, then I improved after about 3 weeks, then I started getting scary neurological symptoms (depersonalisation/ intense anxiety ect) after about 3 months. We are all different, but I would never recommend this (it contains...
  2. H

    JAMA -"Advances in understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony Komaroff

    Sometimes, I'm totally flattened by responses on here too. So, there's nothing in dr Davis' research to hope for? All research so far is insignificant, giving false hope somehow? So I'll just go pop my clogs now huh. I agree, we NEED hope, it's what keeps us going in dark times.
  3. H

    Researcher Interactions Video: Science for ME Q&A with Prof Simon Carding, Quadram Institute, June 2019

    Thank you Andy for this video. I'm fairly local to the quadrum too. Great work!
  4. H

    Sleep making symptoms worse

    I definitely see this correlation - long and deep sleep where I feel so fatigued on waking = more severe symptoms. Less sleep/broken = less severe. Its v odd. Where I used to feel worried at lack of sleep, I now welcome it as it more often than not signifies a good spell is on it's way. I wonder...
  5. H

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    What are the specific symptoms? I don't suffer headaches or neck issues (except sometimes when I drive my neck is stiff, but this has always been the case). Also, I have really good days where my symptoms are very minor - how would this be if there were some big structural issue? Thanks so much...
  6. H

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Where does all this leave me jen? A mum in the UK with no way of finding out if I have some messed up spine?? A gp who still proposes I have 'functional' issues... I feel lost.
  7. H

    Is insulin resistance the cause of fibromyalgia? (Prelim report) (2019) Pappolla et al - Retracted Dec. 2019

    What are your triggers? I'm now starting to figure out mcas and I know I'm suffering.. I avoid gluten and sugar so far...
  8. H

    Trial of CT38 for ME/CFS by Cortene Inc.: big claims being made...

    Moderator note: threads merged. Hi. I received this email last night from Cortene. I wanted to share it with you. Its given me some hope. I emailed a year ago to enquire about an update and am now on their mailing list. I posted on PR and was advised to put on here too, so i joined up to...
Back
Top Bottom