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  1. Sbag
    Post

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    And in the print version
    Post by: Sbag, Mar 16, 2024 in forum: General ME/CFS news
  2. Sbag
    Post

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    It is in the “Readly” version of today’s publication , in the Journal section. I think they only publish one version per day so it’s more than...
    Post by: Sbag, Mar 12, 2024 in forum: General ME/CFS news
  3. Sbag
    Post

    Channel 4 News 19 February 2024: Features Clare Norton, mother of Merryn Crofts

    It was amazing. I teared up as well at the honesty that was put across. All through the piece I was expecting it to then turn and put the other...
    Post by: Sbag, Feb 19, 2024 in forum: General ME/CFS news
  4. Sbag
    Post

    Cognitive impairment and fatigue medications: Methylphenidate (Ritalin), Modafinil, Armodafinil, amantadine

    I was prescribed Modafinil and took it every day for quite a long time (can’t remember exactly but at least a year). It was great and seemed like...
    Post by: Sbag, Jan 29, 2024 in forum: Drug and supplement treatments
  5. Sbag
    Post

    Lying on a sofa

    Definitely support your lumbar region. You can get sofas that have recliner sections nowadays which might be a good hybrid.
    Post by: Sbag, Jan 24, 2024 in forum: Home adaptations, mobility and personal care
  6. Sbag
    Post

    Acupuncture and other traditional Chinese medicine news and discussion thread

    I would like to know who the multiple ME specialists are , seeing as we always struggle to come up with a list on here
    Post by: Sbag, Jan 23, 2024 in forum: Other treatments
  7. Sbag
    Post

    My experience with the vivosmart4

    I have the vivoactive 3 and you can add a HRV widget but you have to select it each time you want a reading. it doesn’t have the body battery...
    Post by: Sbag, Oct 20, 2023 in forum: Monitoring and pacing
  8. Sbag
    Post

    Trial Report Home-based testing protocol to measure physiological responses to everyday activities in ME: a feasibility study, 2023, Clague-Baker et al

    I w as one of the participants in this study and I just want to commend the team for their intentions in this research. just to clarify the...
    Post by: Sbag, Aug 28, 2023 in forum: ME/CFS research
  9. Sbag
    Post

    UK doctors knowledgeable in ME/CFS?

    Bryan Timmins base in Northamptonshire. He is a neuropsychiatrist but when I started seeing him he was of the opinion that ME was a cellular...
    Post by: Sbag, Aug 23, 2023 in forum: UK clinics and doctors
  10. Sbag
    Post

    Experience with LDN?

    Quite a few resources on this here https://ldnresearchtrust.org/how-low-dose-naltrexone-works
    Post by: Sbag, Jan 11, 2023 in forum: Drug and supplement treatments
  11. Sbag
    Post

    Experience with LDN?

    In the uk it needs to be prescribed and then you have to buy it privately but it works out at less than £30 a month. Or you can get pills online...
    Post by: Sbag, Jan 10, 2023 in forum: Drug and supplement treatments
  12. Sbag
    Post

    Experience with LDN?

    The LDN Research Trust also has a good collection of resources - https://ldnresearchtrust.org/
    Post by: Sbag, Jan 10, 2023 in forum: Drug and supplement treatments
  13. Sbag
    Post

    Experience with LDN?

    There are numerous resources on the page but a lot are posted and not documents. I can go through tomorrow on the pc and copy them into documents...
    Post by: Sbag, Jan 9, 2023 in forum: Drug and supplement treatments
  14. Sbag
    Post

    Experience with LDN?

    It might be difficult to try at different dosages as you can’t just start at a higher dose - you do have to start small and work up. I had side...
    Post by: Sbag, Jan 9, 2023 in forum: Drug and supplement treatments
  15. Sbag
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Thanks for checking. It made me really confused,which isn’t hard
    Post by: Sbag, Sep 12, 2022 in forum: Recruitment into current ME/CFS research studies
  16. Sbag
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    When asking about symptoms suffered in last six months it says “less viral infections than usual” Should it be “more”?
    Post by: Sbag, Sep 12, 2022 in forum: Recruitment into current ME/CFS research studies
  17. Sbag
    Post

    United Kingdom - Thérèse Coffey appointed Secretary of State for Health and Social Care, Sept 2022

    she studied inorganic chemistry and nothing to do with bio sciences. I was at UCL doing chemistry at the same time as her and she was the year...
    Post by: Sbag, Sep 8, 2022 in forum: General ME/CFS news
  18. Sbag
    Post

    Low-Dose Hydrocortisone for Treatment of Chronic Fatigue Syndrome - A Randomized Controlled Trial, 1998, McKenzie et al

    There was a post by the ME Association about low cortisol and it was discussed at a conference last week....
    Post by: Sbag, Aug 12, 2022 in forum: ME/CFS research
  19. Sbag
    Post

    Open Pilot Study: A Novel Transcranial Magnetic Stimulation Treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    I have had numerous rTMS treatments for ME in the UK. The clinic I go to is very conscious of any negative issues and will alter treatment...
    Post by: Sbag, Jul 1, 2022 in forum: Recruitment into current ME/CFS research studies
  20. Sbag
    Post

    Online survey of the use of Transcutaneous Nerve Stimulation for ME/CFS, 2022, Physios for ME

    there is a non branded option which works out at about £60. So I think some people think it’s worth a punt at that price. If going for the branded...
    Post by: Sbag, Jun 26, 2022 in forum: Recruitment into current ME/CFS research studies
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