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This is an interesting case study (bolding and spacing added); What lies beneath: a case of spontaneous hypoglycaemia or glucose transporter type 1 defect disguised as chronic fatigue? https://www.endocrine-abstracts.org/ea/0031/ea0031p235.htm

The Pain Toolkit https://pain-sense.co.uk/the-apps/the-pain-toolkit/ https://pain-sense.co.uk/the-apps/pmp/ http://pain-sense.co.uk/about-us/painsense-partners/ Bob Lewin Is this the same Prof Robert Lewin mentioned in this post? https://www.s4me.info/posts/153599/

A case of pseudo-carcinoid https://www.endocrine-abstracts.org/ea/0021/ea0021p55 It doesn't say if his pain and diarrhea resolved when he stopped the 5HTP though, but it's a reminder of how supplements can affect test results, and possibly make symptoms worse.

Thanks, @Lisa108, but I can't get the link to work for me. I'm interested in this case report because I have been looking into carcinoid tumors. These tumors can cause mast cell like reactions - facial flushing, blood pressure changes, diarrhea etc. (They can also be small, and benign.)...

Interesting case report of an ME/CFS patient with carcinoid tumors. Carcinoid tumour associated with enterovirus infection. Journal of Clinical Pathology 2011, Chia J, et al. From abstract; https://jcp.bmj.com/content/64/8/722.full Behind a paywall unfortunately.

Just wanted to mention that myositis can in some cases be paraneoplastic - related to malignancy; https://www.myositis.org/about-myositis/complications/cancer-associated-myositis/

I came across this recently; https://www.findzebra.com/details/7mxmjlQ-pervasive-refusal-syndrome?q=Myalgic+encephalomyelitis This is their ME/CFS page. I've only skimmed it briefly as it's very long. Mentions GET, and personality stuff, which persuaded me not to waste spoons reading further...

@Trish, I read the title of the thread and thought the author was boasting about how well patients are responding to her version of CBT... Look at me, look at me! They respond so well to my CBT!

I couldn't find this posted. Not sure if here is the best place to put it? It says you can read it for free but sign in is required. Chronic fatigue syndrome: a 20th century illness? Wessely, Scandinavian Journal of Work, Environment & Health 1995 (1997) Abstract (spacing added for easier...

Yes, quite a few. I think this is the same guy here(?); https://www.s4me.info/threads/functional-neurological-disorder-an-ethical-turning-point-for-neuroscience-2019-edwards.11268

That link I posted now refers to a November conference. One of the speakers is neurologist, Professor Mark Edwards. His presentation is called; Reframing Persistent Unexplained Physical Symptoms: Functional Neurological Disorders

Why would anyone smoke lead? Is that a thing? This is not a question I'm actually asking. It's just the first question I asked myself when I read that sentence. I think I need a nap...:oops:

I haven't read past the abstract, but it looks interesting. Mind the Hype: A Critical Evaluation and Prescriptive Agenda for Research on Mindfulness and Meditation Abstract (my bolding); https://journals.sagepub.com/doi/full/10.1177/1745691617709589

I was looking at some MUS papers a while back and noticed that quite a few authors were from NZ, mostly from the psych department at AUT. They seem to collaborate a lot with Kings College.

Don't know if she views ME/CFS as functional, but Wrapson has co-authored with Rona Moss-Morris; https://www.google.com/amp/s/www.researchgate.net/publication/313094717_Representational_beliefs_about_functional_somatic_syndromes/amp

What's worrying on this page is the testimonials from pain societies. (My bolding.) https://www.sirpaconference.com An article about the treatment experiences of Dr Martin Johnson from the British Pain Society...

New Zealand again. (@Hutan, above post as well.) Despite the lack of evidence that it works... https://www.healthnavigator.org.nz/apps/c/curable-app/ While it does mention some cons, there is this review by a doctor; https://www.healthnavigator.org.nz/apps/c/curable-app/?tab=22799

The lead author of the above study is developing an app specifically for New Zealanders; https://www.noted.co.nz/health/health-health/chronic-pain-how-online-tools-can-help-manage

Curable is mentioned in this study; Evaluation of Self-Management Support Functions in Apps for People With Persistent Pain: Systematic Review Hemakumar Devan et al Feb 2019 https://mhealth.jmir.org/2019/2/e13080/ Comment from conclusion;

That's a lot of potential income then. I can't see anything on the apple apps preview page that advises people to see a doctor to make sure their chronic pain isn't a serious condition before using the Curable app. So it seems that doctors are now offering treatment to patients that they...