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October 2021 The SARS-CoV-2 main protease Mpro causes microvascular brain pathology by cleaving NEMO in brain endothelial cells https://www.nature.com/articles/s41593-021-00926-1

If you read it intelligently, if only everybody would, what are the chances though? I still feel very concerned for people going to these clinics, I certainly wouldn't recommend it.

Really? I'm shocked, so is it down to patients that CBT remains in the guidelines?

So if this type of cbt is still in the guidelines, then GET continues under another name. So what have we achieved?

From MEA FBook page. NB Following this the article was placed in the Clinical Neurology section. PULSE magazine (for GPs) and the new NICE guideline Following an email from the MEA last night, PULSE magazine has agreed to make some corrections to the news item they published on the new NICE...

It would be interesting if these children could see a psychiatrist unconnected to this to see how many actually do even have depression. We know BPS over diagnose depression when it’s a normal reaction to being unwell.

What an amazing woman! Do read the full article if you can.

The two following posts have been moved from this thread.

Yes, living with ME is very hard on the body. I had to have surgery on my spine recently, I believe it was caused by slouching, trying too hard to remain in a sitting position when I'm so exhausted I should be lying flat. If only they realised that many of our symptoms and other health issues...

It's like walking a tight-rope isn't? You're damned if you move about and damned if you don't!

I am absolutely hopeless at pacing, I just can't relax, I don't think my mental health could cope with long periods of resting. I use 'switching' more, but admit I push myself to do too much physical activity on a daily basis. I have pets that need looking after, they use too much of my energy...

''I'm Sally Callow, Founder of ME Foggy Dog, a social enterprise based in the UK. As an advocate, I have noticed that increasingly over recent years, the M.E/C.F.S patient community has been frustrated at the perceived lack of legal action from M.E/C.F.S charities in relation to political...

Most definitely. @phil_in_bristol should be included in the genetic research, it would be fascinating to compare the genes of people with 'active' ME and those who have recovered/ are in remission.

''cat vomit in the brain'' Love that, good description! :laugh:

@phil_in_bristol I'm so very happy for you, I hope and pray that no further infections or life events ever cause you to relapse. Bless you for all you are doing/have done to help pwme, it's very much appreciated. :hug:

Excellent letter, well done to all and many thanks for your continued hard work.

:laugh: