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Why is this in a thread about anger? Ok, let's be clear. UNUM, the UK government, and Wessley colluded to gaslight a world wide patient population. THAT'S WHY I AM ANGRY. "ME action UK say that on May 17, 1995, Wessely was one of the main speakers at a Unum-supported symposium held in...

Please feel free to move this to a more appropriate board. I never know where to post things.

Unu, Wesley and Ukie walk into a bar. Unu asks, "What patients will die the slowest?" Wesley says, Definitely the MEFS. They're sick, but we can't test it and have no treatment for them." Ukie complains, "But they know they are sick, and so do we!" Unu bangs on the table, saying "We'll lose...

Anger that burns white hot. Gaslighting does that to me. Im going to keep some info here for future reference. So here is info on UNUM. Unum Group is headquartered in Chattanooga, Tennessee. Through its three operating segments — Unum US, Unum UKand Colonial Life — the company is a leading...

Personally, I come down as a nay on the side of spoons. I can see where people might find this a useful help, but it does not help me, or I guess I don't feel it applies to me. When I wake up each day I don't have any spoons. There is no way to allot any spoons for my day, because I never have...

I didn't see a place to list out co-morbidities, so I thought I'd make this thread. Just to give you a list of the other conditions I have that, while treated, have not deleted my symptoms of me CFS. 1. I have Hashimoto's hypothyroidism, which requires me to take Levothyroxine to keep the level...

I read somewhere recently, that what I call "The Travelers" actually is also called "voodoo doll" where pains come in like needles and travel around the body.

Life with even moderate MECFS.... It's like our homes are our refuge and our prison. We know that our spark has been dimmed, yet rail against that theft. We overdo sometimes just to prove to ourselves that we are still ourselves, because we remember. And we miss it. And we want our lives back...

This is an article that was briefly published online. Before that publication disappeared. A Universe Of Pain Constellations Sue Klaus © 2016 Note: this is the personal opinion of one patient, and licensed physicians should be consulted about any health problems. I have to admit that I spend...

When I was finally diagnosed in 1983, I took some time to go to the local Social Security office to ask what was involved in disability, how to get it, and what was needed. As I sat listening to my Social Security consultant / helper, the more I realized that there was no way that I could get...

1. What blood test can be given to determine whether an MECFS patient has the proliferative B cells in their bloodstream, that rituximab and other drugs would eliminate from the bloodstream? 2. Would it be helpful at all after receiving this kind of treatment to also have one or two sessions of...

It's time to remove the word malaise from post exertional problems in mecfs. Malaise doesn't come close at all to describing what that actually is. It's not malaise. It's a full-on mental and physical crash. It's like a living death. There is no way malaise should be used to describe this.