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Thanks so much - really helpful in trying to understand the potential risk/reward in trying something comparatively new. This forum is so excellent - I am a regular lurker on various threads to try to better understand what might help my sister. I really appreciate everyone’s help and kindness...

That is reassuring about lack of side effects and that it has worked better than the usual suspects for you. Thank you for highlighting dosage - I had seen some warnings that seemed to imply the person taking needed to be in bed for 7 hours and some warnings around risk of falls if frail and I...

Thanks very much. That’s really encouraging to hear how much it has helped you. I’m so so sorry that your GP is unwilling to prescribe beyond the three months. I don’t know enough about prescriptions to understand whether there might be any way of appealing or other alternative. Very best wishes...

Oh thank you so much for replying - that’s really good to know.

Very sorry that your sleep deteriorated Binkie4 and wondered if you, or anyone else here, might also have feedback about the impact of daridorexant on their digestion/gut? My sister has severe ME and I am trying to find a “rescue” sleep medication that won’t worsen her gastroparesis symptoms...

In case helpful, this blog gives a useful roundup of practical things people can do to “avoid catching covid” https://livingonplagueisland.blog/2024/08/11/how-to-avoid-catching-covid/ I have a family member with severe ME and we continue to shield to try to prevent their condition worsening...

Re. Holgate quote in this article and in case anyone not already aware, he is due to participate at UK Unrest screening at Royal Free hosp with Afme on 7 Nov https://www.actionforme.org.uk/news/join-us-for-me-event-at-the-royal-free-hospital/