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Nice to see this went through the 70K barrier :)

I did a little search on that site, and suspect the link went a bit awry. I think this is maybe the correct one:- Misdiagnosis on a grand scale?

Immediately after an operation, my wife went down with a really nasty flu-like infection, the combination of the two completely floored her for a couple of days, which was very uncharacteristic, as she invariably managed to battle through such bugs normally. It was only when she was attending...

From that article of David's:- This, to me, is one of the most disgusting things of all. Not only did PACE cause great harm to so many ME/CFS sufferers, by it's grossly disingenuous misrepresentation of their very real illness, but the authors and their enablers have done all they possibly can...

And the power and the glory.

After all this time that is a subtlety I'd not properly appreciated. But it fits of course. The Wessely crew gave the DWP exactly what they wanted for avoiding any disability payments.

:thumbup: :thumbup: :thumbup: (Seems to have got a bit confused with the deadline though. Reckoned there was 10 hours to go when I looked last night, now it says a day left).

Done.

This link may be of interest. I've abridged the heading slightly. Baroness Scott to ask HM's Government what plans they have to introduce a goal of 100% compliance by 2028 with the ME/CFS 2021 NICE guideline

Set myself a reminder for pay day.

But if a statistically significant difference had been shown in cell impedances between healthy controls and ME/CFS patients, even if the reasons for those differences are not yet known, does that not at least demonstrate there may be something worth trying to understand better?

Yes, my wife exemplifies this. And you are right, her beliefs are fine, the key point is that they align with her very real condition, nothing unhelpful about them at all. Sensible pacing relies on this. And I've said before, she always does as much as she can, never as little. I suppose the...

Moved posts Another question here, this time more of a devil's advocate one. To be very clear, I do not in any way believe ME/CFS is a psychological condition whatsoever, my wife (who is the ME sufferer) having demonstrated that day after day for many years. But it occurs to me the psych...

Yes, I guess the point is that there is a statistically significant higher occurrence of this genetic anomaly within the ME/CFS community compared to the general population, but for any one individual with that genetic anomaly, that would not be sufficiently unique to say they had ME/CFS. But...

Can someone clarify this for me, as it sounds contradictory - I know it won't be but I don't properly understand. How is it that ME/CFS sufferers have significant DNA differences from the general population in the 8 regions of their genome, whilst at the same time this cannot differentiate...

Yes, definitely.

It's a long time ago now that my wife was assessed, but it was sneaky from the start. My wife said they kept her sitting in the waiting room for a long time, very likely so she would have rested before any tests. I can't recall the detail, but it was blindingly obvious the assessor was biased...

Done :)

Glad to see the deadline is into early next month, so I've set myself a reminder for payday :).

Presumably there might also be environmental factors (in the broadest sense) that might interact with, or precipitate, some of these DNA changes?