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I totally agree!

Thank you for these blog posts @MittEremltage , especially the careful breakdown of how vague the BHC section on neuroplasticity really is. Their response only highlights the problem: either they don’t understand what these programs involve, or they won’t. Either they haven’t read, or are...

New blog post from prof Garner, about worsening of his symptoms after exertion, and his previous experience with PVF after Dengue, and a lot of sympathy with the ME community: https://blogs.bmj.com/bmj/2020/05/19/paul-garner-covid-19-and-fatigue-a-game-of-snakes-and-ladders/

That’s not what I said, you’re twisting my words. If you have an acute onset of a virus, having ME or not, it’s bad not being examined or having follow ups, that’s what he said, if you look at the context.

I’ve had glandular fever, my ME got much worse after that. This is something else. Too soon to say it’s ‘post’ about a totally new virus or to compare to other ‘old’ viruses. And in what way our bodies will be chronically affected and when (if). The most common symptom (and damage to) is from...

Of course it’s important to point out if there’s some phrases that could be misunderstood by others, but I’ve seen comments that’s really not helping our advocacy. This could be a grate opportunity to explain what PVFS or ME really is and share experiences or knowledge instead of questioning or...

Totally agree, well put. My personal experience of Prof Garner is that he acknowledge PVFS and ME for what it is, though his perspective right now is the ongoing acute phase of covid that seems to be long term for a lot of people. And it’s very frightening. Also, just hearing that it could be...

Oh, so sorry to hear that This is his website: https://www.gordonmedical.com/team/eric-gordon-m-d/

And Dr Gordon works with integrative and functional therapies. From his website: ”Some patients may immediately benefit from intravenous therapies. Others may respond initially to energetic modalities, such as Frequency Specific Microcurrent or Photon Stimulation. Some patients may require...

Well, I wish it wouldn’t be so misused, because for me it’s a painful reality to be so sensitive to perfumes and chemicals, and the Primer for ME explains it like this: “Multiple chemical sensitivity (MCS). A number of patients with ME/CFS also have MCS. Rather than an allergic response, their...

I totally agree. I’ve seen all episodes, and even Jameson’s md is a ‘quacker’ (an md that works with integrative and functional medicine. That was the case with most of the experts), and that doesn’t look good at all. And I’ve seen a lot of people get hypocondric when they go to alternative...