Search results

This is certainly my approach when I work with people with ME and or Long Covid symptoms - your point about permission to do less is probably one of the most useful interventions that we have! It is fascinating as someone with a background of promoting physical activity/exercise, the general...

I'm happy to join if it would be helpful so please keep me posted

Nice. Thank you. I'll try and thibk through how and what over the next couple of days and come back to you if thats ok

I was at a conference last week where there was a slot on ME. At first I was relieved as there was no mention of GET and then I got more disheartened by all the talk of dysregulation. I've since gone and read the bacme guide amd done some reading round it all to try amd understand what...

This is a great question and one we have discussed a lot! We think it will depend for each individual; Different people may have different issues and specific rehab programmes. For example, some may be able to gradually build up by themselves, others may need some specific exercises targetting...

Thank you for tagging us - I know from my recent trip to present in Norway that the Lightening Process has some traction. There are some great patient groups doing their best to counter it I'll try and link in with the physio site

It seems we have work to do! Thank you for tagging us

I have so many thoughts on this! In my day job I have operational oversight of a virtual ward for older people with frailty (known locally as hospital at home). Mainly for people with moderate to severe frailty who are unwell and would otherwise have to go into hospital. For this group of...

thank you for the tag - I hadn't seen this. Some reading for a Sunday!

hello -thanks for tagging us We do have a page on our website for people with severe ME https://www.physiosforme.com/severe-me which covers some of the things that have already been mentioned. We do also have a whole chapter in our book on severe and very severe ME which goes into more details...

Just to add in here - physios can actually prescribe if they have done an independent prescriber course and are working within their scope of practice . OTs can't do these at present.

@ME/CFS Skeptic would it be OK to send you a personal message about this please?

Have just read this - thank you for sharing, really interesting from a physio perspective. I've tweeted to reshare your post

I will have a read and a think about where it might be possible to publish as an article (and what might need to be done to do so) - it can be a bit of a slog to get stuff published but that shouldn't be a deterrent as we know there are still so many people who lack basic understanding and...

thank you

Apologies it may take us a bit longer than usual to respond, we have a house move, surgery and a family bereavement going on between us! We will reply as soon as we can

Great summary. Pacing is definitely not easy! And whilst it can help manage some symptoms for some people it is not a cure!

Never quite sure where is the best place to share updates but we're 5! https://www.physiosforme.com/post/physios-for-me-celebrate-our-five-year-anniversary

We have emailed the TV company: Dear Janet, we are a research, education and advocacy group aiming to improve physiotherapy management and understanding of ME/CFS. We are aware that you have issued a casting call for people with ME/CFS, for a series on people with invisible disabilities who...

Hi there The patient perspective was a lady called Karima from ME Action Scotland I think (I was a bit anxious at that point as we were next on!) She was excellent - really thought provoking She also shared a video with lots of other people with ME which was also a hard but good watch Danny...