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“can worsen the symptoms of some people with M.E.” really ? Workwell Foundation said to totally do away with GET , graded aerobic exercise and that impaired aerobic system and oxygen utilisation applies to all levels of severity and uses to stratify severity . IOM report mentioned the harm of...

Indeed , and the commmets on the past scope mentioned that these interventions of often viewed as rehabilitation

Here are the past stakeholder comments on the original scope and also mention of what NICE did not include in the original scope . https://www.nice.org.uk/guidance/cg53/documents/chronic-fatigue-syndrome-myalgic-encephalomyelitis-scope-comments-table2 Pros and cons of what was and was not...

Note the clinical adviser is mentioned there . Clinical advisers are alos members of the GDG according to the Guidelines Development Manual

NICE should not again be useing Delphi consensus methodology to make clinical recommendations based on opinion and clinical scenarios in the presence of no research and research gaps for sever and children and no research for activity management , which is not evidenced based , extrapolated...

The treatment of comorbid conditions would also need to consider the contraindications of interventions with the metabolic dysfunction and impaired aerobic system , as well as the evidence bace and alternatives for those comorbidites eg personalised healthcare utilising a systems biology...

Also is this a scoping workshop as that happens after the draft scope if one is helf Is this a scoping workshop ? As th NICe gudiliens develepmemt manual says if one is held then it isn’t after the draft scope and pathway diagram has been made in the previous stepsm of the scope develeopmemt...

@Jonathan Edwards would you consider applying for chair of the GDG or any other advertised positions . Patients are trying to ask those they thought would be good to apply