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  1. Guido den Broeder

    The use of the labels ME, CFS, ME/CFS

    It is your source that is incorrect. https://icd.who.int/browse10/2019/en#/G93.3 Of course in that case, all bets are off.
  2. Guido den Broeder

    The use of the labels ME, CFS, ME/CFS

    Again, I didn't say that. I said they were defined as research criteria only. I fully agree that this was a bad idea. The Canadian criteria were a mistake and went obsolete with the ME-ICC of 2011 by largely the same authors, stating that ME doesn't belong with CFS. I doubt that they have ever...
  3. Guido den Broeder

    The use of the labels ME, CFS, ME/CFS

    No, what I want to express is what I did express, that CFS is defined as research criteria only.
  4. Guido den Broeder

    The use of the labels ME, CFS, ME/CFS

    It's based on the fact that CFS is a research diagnosis, to select patients with unexplained fatigue and malaise. You can't 'have' or 'suffer from' CFS, all you can is satisfy inclusion criteria for a study. The moment an explanation for your medical complaints is found, you won't get selected...
  5. Guido den Broeder

    The use of the labels ME, CFS, ME/CFS

    You're still not saying what 'that' is. I don't prefer one term over the other, just like I don't prefer chair over dog. The names ME and CFS are both fine, they just denote two different things. I am quite well informed but you all say different things. That's why for accepted terms we have the...
  6. Guido den Broeder

    The use of the labels ME, CFS, ME/CFS

    Why? Which false ideas? What circles? I'm not in any circle, as far as I know. The entity described by the IOM is SEID. Both the IOM report and Fukuda clearly say that CFS is a research diagnosis, not a disease, and should not be used clinically. My statement pertains to CFS. I have no idea...
  7. Guido den Broeder

    The use of the labels ME, CFS, ME/CFS

    The ICD-10-CM, which is used by US hospitals, has ME at G93.3 while CFS is R53.82. It is not possible for one disease to have multiple entries. However because some people still claimed they were the same, they have added explicitly that the two exclude each other. It seems to me that the...
  8. Guido den Broeder

    The use of the labels ME, CFS, ME/CFS

    Moved post I have never said anything of the sort. CFS is always a misdiagnosis, so it is entirely possible that someone with this label has ME. Statistically, nowadays the odds may be something like 5%. It differs between countries and physicians/researchers.
  9. Guido den Broeder

    Investigating reduced tolerance to alcohol in ME?

    A third of the patients we've questioned developed alcohol intolerance when they hadn't this problem before, and another 30% who already had this issue saw it increase in severity. Alcohol was the most significant of all the intolerances on our list, followed by tobacco. Link...
  10. Guido den Broeder

    Investigating reduced tolerance to alcohol in ME?

    Most ME research is not online. Hypoglycemia is mentioned by Ramsay. From my own studies, some 15% of ME patients actually get diagnosed with it, which is a lot since it will typically only get checked if you ask for it and even then not always. You can google for the effects of ageing.
  11. Guido den Broeder

    Investigating reduced tolerance to alcohol in ME?

    It's not an allergy. ME often comes with hypoglycemia, hence the intolerance. The insulin response in ME is off as well, starting late and stopping late. Therefore ME patients should avoid sugar, too. In time, both intolerances may be somewhat reduced as your sugar level in the fasting state...
  12. Guido den Broeder

    The use of the labels ME, CFS, ME/CFS

    Moderator note. There seems to be a technical problem with a post that had been moved disappearing. It is copied into the beginning of this post, so the two appear together in case it doesn't reappear. ______________ This is how the ME Vereniging Nederland currently describes ME (link...
  13. Guido den Broeder

    The use of the labels ME, CFS, ME/CFS

    This is how the ME Vereniging Nederland currently describes ME (link: http://www.mevereniging.nl/wat-is-me/). Myalgic encephalomyelitis (ME) is an enteroviral vascular neuroimmune disease with an incubation period of 3-7 days. In the ICD-10, ME is classified as a brain disorder (G93.3). The...
  14. Guido den Broeder

    Is ME an immunological disease?

    The original question was about ME. The only relevant recent research is probably the qEEG study by Andrew Pellegrini that validated Byron Hyde's SPECT outcomes which show the damage that the immune reponse does to the brain.
  15. Guido den Broeder

    Professor Michael Sharpe

    It is right there. "I apologise and agree that CFS and ME are best kept separate" Prof. dr. Michael Sharpe, 25 April 2018 to the ME Vereniging Nederland.
  16. Guido den Broeder

    The Unaware Physician's Role in Perpetuating Somatic Symptom Disorder, 2019, Morabito/Barbi/Giorgio

    I have made no such claim. I have ME so I have to set priorities, and BDD is not one of them. My submissions (at an earlier stage) were about the entries of ME and CFS, which included moving CFS to PVFS. What I've said is that I was pleased that they accepted this proposal, which narrows down...
  17. Guido den Broeder

    News from The Netherlands

    Part of the symposium seemed to consist of an attempt to put LongCovid and especially CCI into the ME/CFS basket, following similar attempts in the US and the UK. Other than that, the speakers had no common ground whatsoever, and it remains unclear why they were selected to talk. There was no...
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