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  1. J.G
    Post

    Aripiprazole - Abilify

    If I had to quantify it, for me Abilify gave a sustained ~3-5% increase in my capacity to function and quality of life, undiminished over time. I...
    Post by: J.G, Jan 2, 2023 in forum: Drug and supplement treatments
  2. J.G
    Post

    Aripiprazole - Abilify

    An end of year update from me. I'm close to 18 months in, and Abilify continues to be effective. I take 0.25mg/daily. The cognitive gains I...
    Post by: J.G, Dec 31, 2022 in forum: Drug and supplement treatments
  3. J.G
    Post

    StatPearls: Continuing Education Activity: Chronic fatigue syndrome

    I checked back on the article; it's still peppered with BPS lingo and theorem. The passages quoted by @Sly Saint above are unchanged. However I...
    Post by: J.G, Jul 4, 2022 in forum: General ME/CFS news
  4. J.G
    Post

    StatPearls: Continuing Education Activity: Chronic fatigue syndrome

    It certainly looks that way. I sent them a polite message explaining, in a few lines, the controversy surrounding the PACE trial and the...
    Post by: J.G, Jun 22, 2022 in forum: General ME/CFS news
  5. J.G
    Post

    StatPearls: Continuing Education Activity: Chronic fatigue syndrome

    GET and CBT. How are we still not past this. Unbelievable. :arghh:
    Post by: J.G, Jun 22, 2022 in forum: General ME/CFS news
  6. J.G
    Post

    Long Covid in the media and social media 2022

    Came across this video on my YouTube feed today. SciShow seem to get it :) [MEDIA]
    Post by: J.G, Mar 16, 2022 in forum: Long Covid news
  7. J.G
    Post

    Open Medicine Foundation (OMF)

    If you can't recapture Jerusalem, might as well sack Constantinople instead, right?
    Post by: J.G, Dec 30, 2021 in forum: News from organisations
  8. J.G
    Post

    No signs of neuroinflammation in women with [CFS] or Q fever fatigue syndrome using the TSPO ligand [11C]-PK11195, 2021, Raijmakers, Knoop et al

    It is important to remember that the BPS lobby is particularly powerful in the Netherlands and that many professionals active in the field of CFS...
    Post by: J.G, Dec 23, 2021 in forum: ME/CFS research
  9. J.G
    Post

    United Kingdom: Oxford Health NHS Foundation Trust; Oxford University Hospitals ME/CFS service

    PEM is now listed. Hooray!
    Post by: J.G, Dec 17, 2021 in forum: UK clinics and doctors
  10. J.G
    Post

    Aripiprazole - Abilify

    It's interesting. The medical memoir "Awakenings" on encephalitis lethargica by Dr. Sacks has been on my mind. Sacks treated survivors of the...
    Post by: J.G, Dec 16, 2021 in forum: Drug and supplement treatments
  11. J.G
    Post

    United Kingdom: Oxford Health NHS Foundation Trust; Oxford University Hospitals ME/CFS service

    I emailed them about the surprising omission of PEM (ie. the hallmark of the disease) on the MECFS symptoms list. I received a response thanking...
    Post by: J.G, Dec 14, 2021 in forum: UK clinics and doctors
  12. J.G
    Post

    Aripiprazole - Abilify

    Yap, low-dose aripiprazole is not a silver bullet. And while I'm reluctant to place agency with a drug's end-user, I do think it's important to...
    Post by: J.G, Dec 14, 2021 in forum: Drug and supplement treatments
  13. J.G
    Post

    Aripiprazole - Abilify

    An update from me. I've been on Abilify 0.2mg/day five months now, and I'm still (much) better than I was prior to starting the med. To qualify...
    Post by: J.G, Dec 14, 2021 in forum: Drug and supplement treatments
  14. J.G
    Post

    Implications of Antimuscarinic Autoantibodies in Postural Tachycardia Syndrome, 2021, Li et al

    This seems to be the same group / lead author that previously reported adrenergic autoantibodies in POTS (Li et al. 2014). They also found both...
    Post by: J.G, Aug 29, 2021 in forum: 'Conditions related to ME/CFS' news and research
  15. J.G
    Post

    Covid-19 vaccination experiences

    I had my second Pfizer jab earlier this week; like the first, it was uneventful and anticlimactic, giving me a seriously sore arm but thankfully...
    Post by: J.G, Jul 18, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  16. J.G
    Post

    A randomised controlled trial of the monoaminergic stabiliser (-)-OSU6162 in treatment of ME/CFS (2017) Nilsson et al.

    I see. Good to know!
    Post by: J.G, Jun 14, 2021 in forum: ME/CFS research
  17. J.G
    Post

    A randomised controlled trial of the monoaminergic stabiliser (-)-OSU6162 in treatment of ME/CFS (2017) Nilsson et al.

    I revisited this paper with recent insights into apipiprazole (Abilify) in mind. Both OSU6162 and Abilify are dopamine system stabilisers that...
    Post by: J.G, Jun 14, 2021 in forum: ME/CFS research
  18. J.G
    Post

    Covid-19 vaccination experiences

    Ah, yes. It was this video interview with Dr. Gottfries that I watched forever ago. And my timeline was off by a decade or two - late 1950s, not...
    Post by: J.G, Jun 8, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  19. J.G
    Post

    Covid-19 vaccination experiences

    There's this story of a doctor who contracted ME in the 1970s / 1980s and found that, for whatever reason, intermittently injecting himself with...
    Post by: J.G, Jun 8, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  20. J.G
    Post

    Possible chronic viral infection in ME/CFS (& other illnesses inc Long covid). Discussion.

    We have basically zero reliable data on ME disease progression. There's also an important distinction, I think, between those who are able to pace...
    Post by: J.G, Jun 6, 2021 in forum: ME/CFS research news
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