For ease of access, the direct links to the open letters are Letter to Cochrane: [MEDIA] Letter to the Community: [MEDIA]
Thanks for that, Trish
Cochrane's response to the 2023 complaint said the following: Has anybody looked at that document and what it says about harms? If so, would you...
In addition to these anecdotes and the surveys, we also have more than 100 ME research exercise provocation studies that provide evidence,...
I understand the point of view being expressed re criteria. I just disagree
You are assuming that there's a focus on one single issue but there's no evidence of that. Beyond that, I don't have anything further to add at...
I completely agree that poor trial design is a huge problem. But for me, patient selection is a critical part of trial design - that's exactly...
This is not just my opinion. The IOM and NICE both require PEM for a diagnosis of ME/CFS. Yes, it may be useful to compare people with chronic...
Yes, it could be useful to study "different sorts of asthmatics..." The key there is they all have asthma. But we are talking about a group of...
Playing devils advocate here - Would it be acceptable for a study of an asthma intervention to use any old criteria, including those that...
Do you happen to remember the rough date on this, @Trish
@Hutan - Can you point me to the best place to read what Trish put together Thanks in advance
@Jonathan Edwards - could you expand on this comment? In what way is the post-exertional symptom exacerbation in RA different from that in ME/CFS?...
I have an October 2019 version and am seeing the same thing as @MCFS I have an Oct 3, 2019 PDF of the 2019 review and am seeing the same thing...
If anyone has access to the 2024 version, could you share a copy with me?
Does anyone have the full new version of the review that they could share? If I understand correctly, its because the amended review and the...
Cochrane sent an email to the authors today stating the following: Authors’ rights: If a Cochrane Review is withdrawn at any stage before...
Another Cochrane email from exerciseforme-cfsupdates@cochrane.org pointing to this page on their site...
Here's the email from Cochrane [ATTACH]
I agree that because Long COVID is even more broadly defined than ME was historically, the issue of heterogeneity there is going to be especially...
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