The fact that this is a preprint, data taken from small cohorts, and other potential methodological issues aside - this paper caught my eye...
Ah I've been waiting for this study to be published. I was prescribed Pyridostigmine last year and didn't notice any of the side effects listed...
Can't say for sure that it's the same as what I have but I have pots and I take medication to constrict my veins (Midodrine) which does help me...
I get approximately £113 a week ESA. The exact rates are on the gov.uk website. It's absolutely not enough to live on. I have to combine income...
No sorry I accidentally posted in the wrong thread - it was supposed to be a comment on the NHS report on improving clinical care in neurological...
I e-mailed the department that produced the report featured further down the web page to ask why they didn't mention ME in the report, considering...
Oh thank you Ryan, I will check it out!
Hi @Ryan31337 Thank you very much for your reply, and interesting to hear that you also have very reliable 'viral' symptoms as part of your PEM....
Hi everyone, I am wondering whether anybody who has viral onset (especially mononucleosis)ME and POTS had tried Midodrine, and if so whether you...
So according to this, people with ME who meets POTS criteria should be diagnosed as POTS plus, and those who don't meet POTS criteria but who have...
Thank you - I wasn't aware of this. This is good to know.
Thanks, that's good to know!
For medical education I would prefer charities put together, on collaboration with scientists and expert clinicians, a CPD accredited online...
Hmmm... this hypothesis doesn't seem to match my experience very well either. I didn't have an unusual amount of antibiotics growing up. The ME...
Unpopular opinion but I actually prefer the term SEID over ME or ME/CFS. Because there is such a long history of stigma attached to the latter...
Thanks! He used the term mitochondrial myopathy but it was a small sample size. 22 patients with a clinical diagnosis of mitochondrial myopathy,...
Thank you for the suggestion. If my current new medication trial doesn't help (Midodrine) then I will discuss this with GP. I found it interesting...
This is very interesting. When I crash my breathing changes - it is like big gasps followed by very fast and hard expirations. Like someone would...
I don't know whether this is the same as what you are getting, but when I go out in my wheelchair in the winter my kneecaps can get very cold...
I feel your pain, as a fellow lefty.
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