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I have used the free pattern of https://diymask.site/ for women and men. They are very similar to the pattern Keela Too is using and fit astonishing well. Besides the description there is also a video showing how to sew them.

Beeing a victim of domestic violence is damaging your body. How dangerous concussions can be for longterm health is only known recently in rugby and other sports and was long overlooked in women living in abusive partnerships...

Regarding age, Milo, you may be right. I know several people with POTS or ME with POTS, which had the onset after head/neck accidents, neck treatment, OP with awkward head positioning and this happened in all age groups.

Hi Milo For example whiplash after accidents is more common in women compared to men. And it is known (only now?) that the female neck is less stable and less resistant to brute force - in addition until recently cars were crash testet only with a male dummy or a skaled down one. The argument...

There is one more: G616(P) When symptoms dictate a young person’s life – and the importance of building trust and team work in rehabilitation of patients with complex conditions https://adc.bmj.com/content/104/Suppl_2/A249.1

Good morning, it is on this DVD: https://www.fatigatio.de/shop/?tx_browser_pi1[showUid]=70&cHash=55cc5dbd22

I do not know if what Dr. Scheibenbogen said is the truth or a misunderstanding. It is just what she said in a recorded video talk and probably the source of the rumor. I have seen this video yesterday for the first time. As long as I know it is not on YouTube or something similar.

I saw now the reason for it. Dr. Scheibenbogen said in a video taped talk last summer, the dosing of Rituximab had to be halved compared to the more success trial, due to financial reasons.

From the study... „It is important to note that change was not linear. Individual change over time was varied, with some individuals’ fatigue levels increasing. Improvements in physical functioning and social adjustment did not necessarily match changes in fatigue. This supports previous...

With under 18 years old this might happen in Germany too. I know personally two persons with POTS/ME/? whose parents lost guardianship after they wanted to take/took their child out of the clinic because their children got worse through treatment. The ? stands for: at the present still not...

Thank you for answering. A rumor between people with ME in a Facebook group. Haven’t you heard it before? I thought so too, but before stepping in I want to be sure.

Hi, I heard a rumor, that the Rituximab trial failed only because they run out of money. So they had to cut the planned doses in half and this is responsible for the 0 effect if compared to the placebo group. Is there any sound base to this? I apologize, if this topic was already covered.

Or this: Psychosomatic comorbidities such as migraine, gastrointestinal disorders, and chronic fatigue syndrome are common in patients with OD. in: https://www.jpsychores.com/article/S0022-3999(18)30376-3/fulltext :banhappy:

:thumbup: Thank You so much for the interview with Jane Colby from TymesTrust. It was so nice to hear her speaking. Until now I was only in contact with one of her helpers, also a very kind and helpful lady. We would need someone like TymesTrust in Germany too - (and a Dr. N. Speight, there is...

There is absolutely no doubt about the fact, that in the study CBT or GET had been not beneficial. I definitely don’t like the direction the twitter discussion took. There was a mixture of different patients types, but in PACE actually CBT or GET was not even helpful for any kind of...

Done - 51%

My daughter does not have ME, but POTS. When the symptoms showed their ugly heads, she got told it is just some OI, pretty normal in adolescent females and the remedy would be sports. She was still very active, pretty fit compared to the average adolescent female, and tried hard to keep up her...

Yes they will and they will write a formal complain to AWMV. DEGAM did not put any statement (besides the wrong agreement) from Lost Voices Stiftung in the report neither, which is very strange. Regarding Selbsthilfegruppen, Degam vilifies them, how it worked so amzingly in the UK: Page 71...

I just got into contact with the german „Lost Voices“ because it was statet in the Leitlinienreport, that only the deutsche Gesellschaft für ME/CFS objected to the new Leitlinie Müdigkeit. They were shocked, because they did not agree! (Fatigatio e.V., Lost Voices and DGf ME/CFS took part in the...

I wanted to watch it with german subtitels together with some friends new to the Concepts of ME, doing some awareness work. But NETFILIX denied the connection with my TV :cry::cry::cry::cry::cry::cry::cry:. Never had this problem before and I could not fix it in time.