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Ironically the Querdenker group are also anti-Covid-vaxx. Many of them doubt LC and believe if anything it's all post-vac. But many post vac patients eventually meet the ME criteria and are active under the LC-ME umbrella. The Querdenker might show you compassion when you say you got sick...

This is off topic just a little surreal. I got ill at that very university and wasn't able to go back by the end of the semester. I didn't know they do biomedical research let alone in ME.

I wonder about his motives. A BPS point of view I can accept. Snarkiness..ok. But why this public display of just pure..nastiness. I haven't seen it to this extreme before from any other psychiatrists that disregard ME. I also wonder why his employer hasn't reacted yet. Kleinschnitz is not on...

Agree. The show is mostly addressing genZ and millennials and there are lots of (pop) culture references that not only get lost in translation but also are hard to grasp in German if you're not part of the target audience. The gist of it of exposing how pwLC & ME are being treated as well as...

It's on YT now, don't know how good the automatic translation to English is

They've done better journalism than many classic journalists have done. Also stressing the importance of pacing.

Jan Böhmermann (late night satire, similar to John Oliver) has a segment on LC (starting from minute 11:10) and is throwing shade at Prof. Kleinschnitz, a neurologist that is not only denying ME but also is publicly making fun of the severely ill...

@Nightsong I was also diagnosed with gastroptosis, not by an EDS specialist but a radiologist specialized in dysphagia. She said it might be the reason for my delayed gastric emptying at that time. Other doctors said it's just how a stomach can look like and as of today, I don't have many...

I went to the specialist in Germany that might be mentioned here and I was diagnosed with May Thurner, Dunbar, Nutcracker, Pelvic Congestion by ultrasound. The May Thurner I might believe because it was first seen by a different doctor with ultrasound and phlebography. The other diagnoses...I'm...

Does anyone have a theory on why the impaired judgement occurs? Is it just a "I just want to finish this/ I've missed out on so much/ seize the day" thing or do adrenaline and endorphins really impair judgment on a chemical level like when you're intoxicated?

The only thing that really stops me are other people. When I have the adrenaline I feel like I'm starving at a buffet and I'm loading way too much on my plate and only realize it afterwards when my belly hurts. Others see it and stop me. Myself, it feels like my brain is switched off and I...

I would say anyone being severely ill is at risk for developing osteoporosis. Regarding PPI, there seem to be different opinions on it, so I'm not sure. Also if Calcium alone is enough or of it needs to be combined with Vitamin D.

Good idea, thanks! Bisphosphonates comes with a lot of side effects, I was looking into osteo anabolic meds like Forteo and Tymlos. But they're really expensive and only given to people who had multiple fractures and unsuccessfully tried the other meds. I feel like I'm sitting in a speeding...

Not at all, unfortunately. Sun and heat are making things a lot worse. I thought for years I was crazy but did the test again yesterday, my Endo pain was really good, below baseline. Took Vitamin D and pain started at night. I assume it causes some sort of an immune/inflammation reaction.

I used to take PPI for 3 years prior and I only learned after it can also contribute to bone loss. I do take Ca supplements but Vitamin D makes my endo symptoms worse. I've tried different brands, dosages etc. but always flare up couple of hours after taking it. It's very odd.

Hi! I was diagnosed with osteoporosis via DXA Scan in 2019 at age 32. I've been having ME since age 22 and developed endometriosis, been on Dienogest that lowers estrogen significantly for 9 years. So I assume estrogen reduction and inactivity are the cause, no others were found. My bone...

Oh then it was the same med! Didn't know there was an antidote. My reaction wore off after this one I.V. Very scary what these meds can do :(

May I ask what drug caused akathisia in you? I think I might have had something like that after MCP IV at hospital. My body was like a puppet on strings that someone else pulled. I could controll my movements but not the strings. So I got up maybe a houndred times to go from bed to bathroom and...

Even the headline is just awful. It sounds like these scams - "how to get rich online fast" :(

It's a shame. It's really not rocket science to think of endometriosis when you have excruciating period pain and other cyclic symptoms :( I got my diagnosis after googling for 2minutes and yet it took 4 years to have it formally confirmed.