I too was concerned. I not only remembered my premorbid IQ scores, I ordered a copy from my old high school as a guardrail against my increasingly...
I have POTS - tachycardia and rising BP within 10 minutes etc. But I think my most unpleasant OI symptom is loss of balance. This also translates...
In theory only. And when it comes to medicine, pretty much for the idealogues only. In reality, particularly when you stray into contested disease...
Ok, but I'm still unclear of what you're trying to say. I get that you need eyeballs to see, and neurons, etc, but it's still redundant to say the...
I'm unclear what the difference would be between fatigue and pain, and the perception of fatigue and pain, but the potential genetic role is...
At least partially undone by at least one unfortunate thing re: making sweeping declarations about infections like chronic Lyme, if @Utsikt's...
The millions who have evidence they have one or the other will be relieved to hear this.
Interesting study that explores RYR1 gene variations and their import to things like muscle weakness and ATP and mitochondrial function, and how...
I generally look at these gene explanations as a form of victim blaming. Regardless, there is no need for HLA to explain persistence, at least...
So is taking in more salt, and I'm equally skeptical of its success as a treatment. Not sure what this has to do with POTS.
Over significant fields of time? Does infection duration factor in? Is the IgG vs IgM consideration a thing with infections that persist? Is this...
Imo, this is a very dangerous declaration. I would suggest the eyes of most of the people who need persuading are of the political sort. Doctors...
Agreed. Yet I have to worry about stepping on a doctor's or nurse's toes most times I try to correct a misguided notion. You may not understand...
I cannot speak for most pwME, of course, but I use terms like brain fog because I know most doctors would not understand if I went into specifics,...
Does this observation hold true over long time frames involving infection, e.g. three years vs. 30 days?
Diagnostically or otherwise, I am not sure what role channelopathies play in ME/CFS. It may be the end game, it may be irrelevant. Like the...
I think fatigue and fatiguability have as much of a discriminatory faculty for ME/CFS as they do for the flu.
I think emotions are easy to plug into the PEM equation, especially strong emotions. Heart rate, respiratory rate etc are all impacted by...
In a roundabout way, I think that what we mean by a diagnosis of ME/CFS is that there are holes in the field of diagnostics, and researchers...
Years back I belonged to a forum where patients challenged researchers and clinicians. It was structured differently than here. Here most of us...
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