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Well, yeah. Okay, can we not slip into semantics that border on sophistry? Most of us here know that misogyny was part and parcel to the history of our disease. And I'm a male.

?? So let's add to that history?

My sisters best friend hated it. It was done to prevent her from suicide. She killed herself regardless, It's overtly brutal.

It is barbaric. I wouldn't trust any of the "literature." I sympathize with your position with your poor wife, and I am not second-guessing.; I am saying it's a primitive and brutal thing.

Lyme and other tick-borne diseases? Not as bad as ME/CFS for women, though. I hope you stay and continue to contribute. Your perspective helps me, at least.

That pesky persistence....

Yeah, I suppose I would prefer to wait.

Ah. It's good to be smart.

This is such a solid development. I just hope persistence is given its due. After all, how do you look for viruses with crap diagnostics, or, where I live, for viruses that can be chronic - and even kill - with NO diagnostic? That doesn't even touch upon the bacteria and parasites with a...

Luck. It happens. It might not sound scientific, but the dice roll our way when they roll, sometimes. Rarely, but sometimes. When we figure out why, it will have all been crazily obvious.

Insularity, like ignorance, has its benefits. Unfortunately, those can come at the profound expense of others. I suppose I should add indifference to the first two qualities.

This appears to me to be not so much an expose of the biological mechanisms of chronic fatigue, as a loosely linked series of theories, loaded with "maybes" and "possiblys". Some of it makes me want to hit my head against a wall: "provide a complementary exercise physiology perspective. Using...

That was several years ago, but my wife thinks it was Ezetimibe or brand name Zetia. Her cardio calls it a non-statin statin. She is still on it, along with several other heart meds.

As I recall, it was fairly wide known among periodic paralysis patients that statins might cause problems. I remember arguing with my wife's very competent cardio about giving her statins - which she needed, on paper. She took them and had a bad reaction. We switched her to a non-statin...

Persistence.

A patient-led group would have to earn the reputation of informed disinterest specific to ME/CFS, then evolve that to imprimatur status such that its stamp of approval was an incentive for any researcher to claim. Easier said than done. I think we've achieved the former among a handful of...

Boy, this sounds like such a boring illness. Delete "debilitating", and I'm left with a yawn - especially with the silly underscoring of fatigue (yet again). I cannot believe they still don't get it. In fact, I don't believe it. This has the feel of another NIH escapade. If you're going to...

As you point out, definitions matter. But I think it is equally important to how it is framed. You can share the same symptoms, but any physical limitations - in the signalling scenario - would just be an error in perception, e.g. you only think you are limited to 50 steps a day, but in reality...

It would be helpful if you would be specific about what you mean about "brain events". Very specific, without invoking analogies.

Your analogies simply serve to deflect, at least potentially. You - it seems to me - keep reducing our pathology to some kind of mistake of perception. Er, a magical signaling error of some sort which suggests to me we are not really sick, we just think we are due to that weird signaling...