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I have seen a few diligent doctors, but I've never met one who is diligent enough. They all bring their own biases to the game. It is encumbent on the patient to be diligent enough. That aside, even the most caring and diligent of doctors is limited by diagnostic shortcomings. When it comes to...

By extension, it seems not unreasonable to speculate that a significant portion of ME/CFS patients - qualified by competent clinicians - in reality have Lyme or one of its sister TBDs, or a tandem, or a country club worth. I invite anyone (@Jonathan Edwards ? @Trish ?) to disprove this idea...

Neuroborreliosis testing is notoriously suspect, especially - imo - after they changed the testing protocol about 15 or so years ago to an antibody index. They really have very little other than BS to rest any diagnosis on. The CD57 thing is similarly tarnished. Cd57 is relied on by a large...

Or pest, something to avoid, at best to be tolerated (even while we are being swatted at), but not indefinately - which speaks to why so many of us are left untethered to old friends and family members alike. Real diseases either resolve or kill. Everyone knows that.

Did someone give you a neurolyme diagnosis? Did they use your CSF to determine it? Don't mean to pry, I'm just curious. I had a lumbar puncture that help determine my neuroLyme, but there were politics at play and associated controversy. So, it's always interesting to me.

That's a tough position to be in. :(

Which symptoms? ME/CFS? Yes, I pace. I suffer from bad insomnia, so I take sleep meds. Levo for my thyroid. IF I had money I might be tempted to throw some of it at my Lyme and Babesia and probably bart - but I doubt it. I've traveled that route far too far and far too long. I think it's too...

It's been a while since I've read about the different western blot bands and CD57 on this forum. It's like a cascade of memories. Very cool. Yep. Definitions come by the dozen in Lymeworld. It's very political. I always advise new Lyme patients to hone up on the history of the Lyme struggle. (I...

I think it fascinating you refer to "chronic Lyme" clinics. I've always simply gone to an infectuous disease doctor who treats all infectuous diseases, but because of where he is located, he is well versed in tick-borne diseases. And for me it's not chronic Lyme, or PTLDS - it's just late stage...

? Please elaborate.

Yep. Or the problem is there, just lurking in crappy testing protocols.

From the study: " ME/CFS also shares key neurologic features with PTLDS, particularly in its hallmark symptoms of profound fatigue, post-exertional malaise and cognitive impairment. ME/CFS is now strongly suspected to be an IACI, and research has identified possible underlying mechanisms that...

No shit. This has been a defining problem in LymeWorld for half a century. ETA: I'm curious to find out how they propose to resolve this dilemma what with the diagnostic logjam that's beset the community since the '80's. Patents pose serious hurdles.

I was in an ME/CFS study several years back where a lumbar puncture was required. I'd had a couple for other studies, so I wasn't overly concerned. But it took them well over an hour with that long needle embedded in my spine to withdraw enough fluid. They even manipulated the gurney they had me...

Judgement, reasoning, memory, word-finding, decision making - all, for me, can fail, abruptly, in noticeable fashion, just from a casual interaction or sudden emotion; or, can slowly erode during the course of a typical day merely from daily wear and tear. Very similar to what happens when...

Both muscle weakness and stamina for me can fluctuate. It's maddeningly unpredictable - and that's not even factoring in PEM. Neither is anywhere near to levels prior to ME/CFS, and both seem to be inexorably worsening, albeit gradually. But then, I am a senior getting older, so there's that...

I'm not sure that is the point. Regardless, if vector-borne diseases are at play in the pets of ME/CFS patients, and the symptoms approximate each other, that is a curiosity for some. That should in no way imply a causal association. I have ME/CFS and three tick-borne diseases. My small dog...

I imagine this is a function of poor wording, not 8 dogs at a given moment, but over time. Not atypical at all, at least not in the US. And yes, I can think of several diseases that, in pets, might appear similar symptom-wise to ME. Some would know. Increased signs of lethargy, a gait that is...

These were all U.S. cases. I don't think this necessarily implies a causal relationship of diseases between pet and pet owner. I think it suggests - at least in many cases - vector-borne diseases that the pets have that in fact do resemble ME/CFS. Anaplasmosis, Borrelia, Bartonella. The owner...

A chronicity rate of roughly 20% is strikingly familiar.