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Interesting. For me it still feels like some membrane is torn and the horizontal helps the pressure to the head. The rheumatologist sent me to a cardiologist that confirmed the 'pots-like' symptoms with heart rate, but said definitely not the heart. Increase my salt intake is what he said...

I meant to start that last comment with "in my thought process"... and did some quick look ups on that TFP they suggest -- it's NOT a "nice" drug, but maybe the components can be analyzed to understand why it works on some things. An excerpt of wiki: It has been experimentally used as a drug...

I didn't buy her books, but did read this article and it made me think IF she has been maligned like she says THEN there might be more to her claims...and vaccines might have problems they don't want investigated. I am not anti-science, but am anti-corruption. I want the truth about why I'm...

When they talk about these neuropeptides in plasma it falls back on the inflammation studies Younger was/is doing to measure what is overexpressing and the systems out of whack. Still feels like a pump signal is backwards to me, even though I'm not educated in this. There was a new article...

:emoji_raising_hand:Thanks Marky ... :bag::cautious: ...not used to posting, but have a real interest in why our metabolism is upside down and how to get unstuck. Midnattsol, I also use loads of omega3(!!) and find low carb/no sugar, high protein keto type EGGS! intake helps some functioning...

I'm not sure about all the chemistry. This illness requires an inordinate understanding of all the things that can go wrong in energy production, then try to self-reverse-engineer for all the varied broken things. By itself that is terribly exhausting. Understanding the Krebs cycle and how...

Thanks very much, Jonathan. Still think there is something awry in the barrier. As you said: "very likely that there are physiological problems in the brain in ME/CFS". To me it's like there is a pump valve backwards. In the article I wasn't as focused on systemic inflammation as much --...

"Lives are being stolen..." at least they're beginning to characterize the predicament.

Hello everyone, I'm fairly new here -- I love a lot of your posts, and your group has helped me so much since I have been ill to make sense of what I'm experiencing and that I'm not alone, that this Thing is a Thing, not just me losing my mind or making stuff up... Trish separated the article I...

Yes. I wonder about this too! My family helps me with an ice pack to the back of the neck, a cup with 1/2tsp baking soda water and maybe 85% dark chocolate to also support recovery. My breathing also is very different. Most times very shallow and every once in awhile a deep breath making my...

For me it feels like the membrane has a leak - some pressure issue somewhere that drains off any energy before it gets delivered. As if my system has been thrown in reverse gear when I want to step on the gas. And the head pressure in sinus, other places with inflammation from PEM feels like a...

Moderator note: Copied from this thread: "Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia... van Campen et al, 2020 _____________________________ There is this new article but sorry if it is old study news, I'm new to...