1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 15th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Search Results

Search Again
Page 1 of 2
  1. Ellie_Finesse
    Post

    REC advice on PACE trial data changed in favour of release

    Their reasoning (edited: resining) doesn’t make sense! There are ways they can release the data without breaching patient confidentiality. Sounds...
    Post by: Ellie_Finesse, Jul 14, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  2. Ellie_Finesse
    Post

    A general thread on the PACE trial!

    I still struggle to understand how they say GET works! To me it doesn’t make any logical sense.
    Post by: Ellie_Finesse, Jul 10, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. Ellie_Finesse
    Post

    ME = Late onset Autism?

    What a lot of people don’t understand is that it’s more common than not for that to happen with a child with autism. It’s not that they lose their...
    Post by: Ellie_Finesse, Jul 8, 2019 in forum: ME/CFS research
  4. Ellie_Finesse
    Post

    ME = Late onset Autism?

    I am not really sure what you are trying to say here but if it’s autism and ME being connected and you can get late onset Autism, then no that is...
    Post by: Ellie_Finesse, Jul 7, 2019 in forum: ME/CFS research
  5. Ellie_Finesse
    Post

    Physios for ME

    @PhysiosforME this is an excellent idea. I am currently seeing a physio for because I have EDS, he has tried to be very understanding of my ME...
    Post by: Ellie_Finesse, Jul 6, 2019 in forum: General ME/CFS news
  6. Ellie_Finesse
    Post

    Poll: Gastrointestinal symptoms

    I put my GI started before I got ME but I do have EDS as well. Over time, since I relapsed with ME 4 yrs ago, my GI symptoms have got worse. EDITED!
    Post by: Ellie_Finesse, Jun 30, 2019 in forum: Gastrointestinal and Urinary
  7. Ellie_Finesse
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Studies and a disclaimer from those that have recovered from their ME that patients should add caution when making a decision about surgery, not...
    Post by: Ellie_Finesse, Jun 3, 2019 in forum: ME/CFS research news
  8. Ellie_Finesse
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    You are right to a point. I wasn’t saying that CCI wouldn’t be present just that I feel that not all cases would need the surgery as there are...
    Post by: Ellie_Finesse, Jun 3, 2019 in forum: ME/CFS research news
  9. Ellie_Finesse
    Post

    EDS, hypermobility, and the link, if any, to ME/CFS

    HEDS is very much real, myself and my children have it. It’s of my understanding, from talking to my rheumatologist and others with EDS or those...
    Post by: Ellie_Finesse, Jun 3, 2019 in forum: Fibromyalgia and Connective Tissue Disorders
  10. Ellie_Finesse
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I just want to say, before I say anymore, that I have the upmost respect and admiration for @JenB, at the way she has fought to get awareness and...
    Post by: Ellie_Finesse, Jun 3, 2019 in forum: ME/CFS research news
  11. Ellie_Finesse
    Post

    18% patients with Multiple Sclerosis are Misdiagnosed (2019) Kaisey et al

    I’m sure I remember reading somewhere that migraines can also cause lesions on the brain, which might explain where the misdiagnosis comes from.
    Post by: Ellie_Finesse, Jun 2, 2019 in forum: Neurological diseases
  12. Ellie_Finesse
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I agree, I have HEDS ME and chronic migraines. My ME specialist noticed my joints and asked my GP to refer me to rheumatologist. She was shocked...
    Post by: Ellie_Finesse, May 27, 2019 in forum: ME/CFS research news
  13. Ellie_Finesse
    Post

    Psychometric properties of the Cognitive and Behavioural Responses Questionnaire (CBRQ) in adolescents with CFS, 2019, Loades, Chalder et al

    https://www.cambridge.org/core/services/aop-cambridge-core/content/view/FF29B25634980EBEF557E5C8754040B9/S0007125000079009a.pdf/longterm_sickness_a...
    Post by: Ellie_Finesse, May 23, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  14. Ellie_Finesse
    Post

    Acupuncture and other traditional Chinese medicine news and discussion thread

    Merged thread Acupuncture and ME crashes Because of the issues of dislocations and pain in my joints, due to EDS, I was referred by my go to a...
    Post by: Ellie_Finesse, May 16, 2019 in forum: Other treatments
  15. Ellie_Finesse
    Post

    2 metabolic traps/2 types of ME/CFS

    Also, another thing I thought of. Maybe fatigue isn’t a main symptom after all. It’s possible you could be right. I still think because it’s a...
    Post by: Ellie_Finesse, May 16, 2019 in forum: General ME/CFS news
  16. Ellie_Finesse
    Post

    2 metabolic traps/2 types of ME/CFS

    Hmmm I see where you are coming from, it’s a difficult one. Because fatigue is very grey area and people tend to have different opinions on what...
    Post by: Ellie_Finesse, May 16, 2019 in forum: General ME/CFS news
  17. Ellie_Finesse
    Post

    2 metabolic traps/2 types of ME/CFS

    I personally don’t think there are different types of ME. But I do think that symptoms can vary from person to person. I have fatigue, brain fog...
    Post by: Ellie_Finesse, May 16, 2019 in forum: General ME/CFS news
  18. Ellie_Finesse
    Post

    USA - Mayo clinic

    I agree with @Valentijn it’s still GET but done slightly different where you don’t push through, I was lucky in the sense she showed me how to do...
    Post by: Ellie_Finesse, Nov 30, 2017 in forum: USA clinics and doctors
  19. Ellie_Finesse
    Post

    USA - Mayo clinic

    Totally see what you are saying hence the contradiction at times that she gave...... at some point we have all increased our activity when we felt...
    Post by: Ellie_Finesse, Nov 29, 2017 in forum: USA clinics and doctors
  20. Ellie_Finesse
    Post

    USA - Mayo clinic

    Activity management to reduce my crashes! They use the basic principles of graded expertise and pacing without using graded excercise in the...
    Post by: Ellie_Finesse, Nov 29, 2017 in forum: USA clinics and doctors
Showing results 1 to 20 of 23 Next >
Search Again
Page 1 of 2