Their reasoning (edited: resining) doesn’t make sense! There are ways they can release the data without breaching patient confidentiality. Sounds...
I still struggle to understand how they say GET works! To me it doesn’t make any logical sense.
What a lot of people don’t understand is that it’s more common than not for that to happen with a child with autism. It’s not that they lose their...
I am not really sure what you are trying to say here but if it’s autism and ME being connected and you can get late onset Autism, then no that is...
@PhysiosforME this is an excellent idea. I am currently seeing a physio for because I have EDS, he has tried to be very understanding of my ME...
I put my GI started before I got ME but I do have EDS as well. Over time, since I relapsed with ME 4 yrs ago, my GI symptoms have got worse. EDITED!
Studies and a disclaimer from those that have recovered from their ME that patients should add caution when making a decision about surgery, not...
You are right to a point. I wasn’t saying that CCI wouldn’t be present just that I feel that not all cases would need the surgery as there are...
HEDS is very much real, myself and my children have it. It’s of my understanding, from talking to my rheumatologist and others with EDS or those...
I just want to say, before I say anymore, that I have the upmost respect and admiration for @JenB, at the way she has fought to get awareness and...
I’m sure I remember reading somewhere that migraines can also cause lesions on the brain, which might explain where the misdiagnosis comes from.
I agree, I have HEDS ME and chronic migraines. My ME specialist noticed my joints and asked my GP to refer me to rheumatologist. She was shocked...
https://www.cambridge.org/core/services/aop-cambridge-core/content/view/FF29B25634980EBEF557E5C8754040B9/S0007125000079009a.pdf/longterm_sickness_a...
Merged thread Acupuncture and ME crashes Because of the issues of dislocations and pain in my joints, due to EDS, I was referred by my go to a...
Also, another thing I thought of. Maybe fatigue isn’t a main symptom after all. It’s possible you could be right. I still think because it’s a...
Hmmm I see where you are coming from, it’s a difficult one. Because fatigue is very grey area and people tend to have different opinions on what...
I personally don’t think there are different types of ME. But I do think that symptoms can vary from person to person. I have fatigue, brain fog...
I agree with @Valentijn it’s still GET but done slightly different where you don’t push through, I was lucky in the sense she showed me how to do...
Totally see what you are saying hence the contradiction at times that she gave...... at some point we have all increased our activity when we felt...
Activity management to reduce my crashes! They use the basic principles of graded expertise and pacing without using graded excercise in the...
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