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  1. Arisoned

    Low-Dose Naltrexone restored TRPM3 ion channel function in Natural Killer cells from long COVID patients, 2025, Martini et al

    Those are doses used wordwide, not just in the UK. 50mg of naltrexone has a completely different action to LDN. Normal doses of naltrexone does not produce endogenous opioids or lower inflammation. The original low doses ranges are from researcher Ian Zagon -...
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    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    Thank you for asking this question. Interestingly after years of not drinking and exclusion diets, then resuming drinking again in the noughties - I was fine and could drink with no issues for a short while anyway! I’ve had various relationships with alcohol depending on how unwell I have...
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    : TV casting call for people living with ME/CFS

    I don’t think it’s out the realms of possibility that people think pwme exercise when a video made and shared by the “World ME Alliance” in may, has someone on a push bike with a bike helmet on. The charities have been selling inspiration porn for years - Beth French as one example with Action...
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    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    I just want to add Fiona claims that Curable (PRT) is different to any brain retraining, lightning process or CBT which she did in the past they didn’t help her, so suggesting she reads stories of people who haven’t recovered using LP or were harmed using LP CBT etc is pointless because she’s in...
  5. Arisoned

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    Exactly. Pointless remaining in an echo chamber.
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    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    It’s how George Monbiot has written the articles he has about ME. Without twitter he would never have known about the suffering neglect and bad science.
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    United Kingdom: UKCRC (UK Clinical Research Collaboration) Subgroup on ME (part of the UK Government ME/CFS Delivery Plan)

    I don’t think Invest In MER agree either, hence working towards The Centre of Excellence and being the founder member of the EMEA. Years of energy and fruitless efforts trying to engage the CMO. They say- Invest in ME Research (IiMER) has, as an objective, to make a change in how ME is...
  8. Arisoned

    Trisha Greenhalgh on ME/CFS and Long Covid

    You’d think…
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    Long Covid in the media and social media 2023

    That’s a joke
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    O'Dowd-Crawley early intervention study

    Quite scary this was only two years ago.
  11. Arisoned

    Antihistamines

    There was an issue with ranitidine - “The recall includes all prescription and over-the-counter ranitidine drugs as ongoing investigations uncovered levels of N-Nitrosodimethylamine (NDMA), a probable human carcinogen, increase over time. The FDA has requested all ranitidine (Zantac) products be...
  12. Arisoned

    Antihistamines

    https://www.biovea.com/uk/product/detail/1982/acid-controller-maximum-strength-125-tablets These are inexpensive. Not sure what country you are but they ship worldwide I think.
  13. Arisoned

    Antihistamines

    I used to buy famotidine very cheaply here before I had it prescribed by my GP - https://www.biovea.com/uk/product/detail/1982/acid-controller-maximum-strength-125-tablets You can buy H2’s anywhere, just google. Fexofenadine seems to be the favoured but cetirizine is very very cheap, you can...
  14. Arisoned

    Experience with LDN? low dose naltrexone

    LDN included as a recommendation for the treatment of pain, fatigue and neuro symptoms in the review below - Link to the thread: Long COVID: major findings, mechanisms and recommendations, 2023, Davis, Topol et al
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    Experience with LDN? low dose naltrexone

    https://www.facebook.com/LDNNow
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    Experience with LDN? low dose naltrexone

    http://ldnnow.com/48501/90412.html References: at the link http://ldnnow.com/48501/90512.html
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    Experience with LDN? low dose naltrexone

    I don’t think that low ESR’s are necessarily the case. Cort’s report in HR in 2019 on “clumpers and sliders” discus Ron Davis and Dr Bella Chheda’s results, and the results of the biobank study - “As an infectious disease doctor, Dr. Bela Chheda had run hundreds, probably thousands of ESR or...
  18. Arisoned

    Experience with LDN? low dose naltrexone

    I use these - http://www.ldnnow.com/ - Jayne Crocker is from the UK and is contactable. I would think she would be very helpful. https://www.ldnscience.org/ The other admin for the ME and Fibro facebook page is a PHD Medical Biologist. I have asked him if he would be happy to gather some...
  19. Arisoned

    Experience with LDN? low dose naltrexone

    Here are the links to Prof Theoharides studies. https://me-pedia.org/wiki/Theoharis_Theoharides Prof Theoharides spoke at The IIMEC13 Anne Örtegren Memorial Lecture.
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