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    Preprint Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, DecodeMe Collaboration

    Hi Just a few questions please. Going forward, are there working groups/researchers already requesting decode data? If so, do we know any details? Are pharmaceutical companies able to use the results from the decode ME and able to use existing technology/methods and start testing with...
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    Protocol Evaluating the Efficacy of Remdesivir for Long COVID Following a Confirmed COVID-19 Infection. (ERASE-LC), 2023, Mark Faghy, University of Derby, UK

    Regardless of trial design, is the rational behind the use of Remdesivir in long covid a valid one? I think the antivirals studies for ME has produced no convincing results, but I don't know for sure
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    Protocol Evaluating the Efficacy of Remdesivir for Long COVID Following a Confirmed COVID-19 Infection. (ERASE-LC), 2023, Mark Faghy, University of Derby, UK

    Merged thread https://www.bbc.com/news/uk-england-derbyshire-67081243.amp This was in the news yesterday. Any thoughts??
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    United Kingdom: Oxford Health NHS Foundation Trust; Oxford University Hospitals ME/CFS service

    "Starting with some gentle, regular, activities you can gradually begin to rebuild your stamina." I find this quote deeply troubling.
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    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    What about other media outlets? Telegraph, daily mail, itv etc. Isn't it an idea to contact them to improve coverage?? This is an opportunity for us to change the narrative
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    UK Genome Wide Association Study (GWAS) project - draft website goes live, feedback sought on recruitment plan, and updates

    Hi. Regarding "recontactable for further questionnaires and studies". What kind of possible studies do you mean? Drug trials?
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    Oxidative stress in exercise training: the involvement of inflammation and peripheral signals, 2019, Francesca et al

    The reason i ask is because people often say that their trigger in getting ME was a virus, but often said they had busy lives/stress of some kind whether it's physical or mental before they got ill and this contributed to getting ME in the first place. I don't know if there is evidence for...
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    Oxidative stress in exercise training: the involvement of inflammation and peripheral signals, 2019, Francesca et al

    Is there a theory or evidence that 'overexercising' may cause ME in the first place? Or perhaps it could be a contributing factor with a patient catching a virus?
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    Mike's EU Marathons

    The link is: https://www.bristollocal.tv/live/ Well done Mike
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    Cyclophosphamide drug questions?

    Thanks for reply I'm just concerned that Cyclophosphamide treatment rationale is the same as rituximab. Due to the negative results from rituximab, whether this means cyclophosphamide probability of working is lowered
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    What treatment trials for ME/CFS are currently ongoing?

    Just created a new post
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    Cyclophosphamide drug questions?

    Wonder if someone could help clarify things please. Is the CycloME Part A trial being published any time soon? Does the results from rituximab lower expectations for the results for cyclo? Also, what is the theory behind cyclo working in ME? Thanks
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    What treatment trials for ME/CFS are currently ongoing?

    Wonder if someone could help clarify things please. Is the CycloME Part A trial being published any time soon? Does the results from rituximab lower expectations for the results for cyclo? Also, what is the theory behind cyclo working in ME? Thanks
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    Phase III Rituximab Trial - News

    Dear Jonathan, Regarding the Cyclo drug trial by Fluge & Mella, does the results from rituximab have any implications for expectations for the effectiveness of Cyclo in ME? Regards
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