"Where lived experience and science meet" -- wait, what was the motto of S4ME again? That coffi party is so disingenuous, in so many ways. (The...
P.S. When I showed a short video of my funny gait to a psychiatrist, he named it 'motor fatigue'.
Would it be relevant to know whether people experience their muscle symptoms differently if their muscles are being moved passively, while they...
Just bumping this thread in case it's useful for the work on the PEM factsheet -- apologies if you're having that on the screen already @Trish
I think it's a pity that they didn't at least acknowledge the potential gap / need for clarification in the guideline with respect to nutritional...
Just adding this paper from 2019 here:
Yes, strictly speaking that was another review but with some of the same authors (Larun et al). I just find it hard to imagine what other version...
Sorry for being slow on the update -- @Jonathan Edwards do you refer to the planned Individual Patient Data review here? If yes, adding the...
I think adding a year to that sentence could help with regard to clarity? "In [year] I had sight of another version..."
Continued from above. Now being moderately to severely affected I find it difficult to disentangle which symptoms are just due to a random...
Apologies, just skimming, only have read the last two posts since I last checked. So maybe redundant. Agree both that PEM probably works best as...
Not sure whether it's OK to further comment before we know the committee's take on this project, but also not sure whether I will be able to...
I find it helpful to have a look at others' explanations to get a clearer sense both what could make sense to do in a similar way (i.e....
links to previous discussions on the forum: General thread on epidemiology -- discussion on prevalence e.g. here:...
Yes sorry, I was meaning for having a start with #1 from that list 1. What is ME/CFS? (Symptoms, diagnosis) Edit: Maybe the first document...
Huge thanks to all who started this discussion and added suggestions. Encouraging. Not able to collaborate myself currently but just a thought...
I like the name 'ME/CFS Skeptic' but having read through the comments I see the reasons for changing the handle, too. Also like "ME/CFS Science"....
Yes, probably they didn't realize. Which underscores how misleading it is. Thank you and also to those who reacted on Xitter. Yes, and they...
Not sure -- I remember vaguely that adding an editorial note/ a link to the EiC's announcement was an idea proposed by forum people? I think the...
Struggling with following the news on this -- just saw that obvious error on the '2024' review's abstract on Pubmed abstract where they added:...
Separate names with a comma.
