This study is recruiting at the moment. It is still vague and all the previous comments appear to have been ignored. I've expressed an interest in...
Workwell suggest 2 weeks of rest, no driving to the test.....etc
The idea of sitting on a bike pre warm up is pretty abhorent, do they not know that for people with ME/CFS sitting is an aerobic activity.
It is odd that people with POTS were excluded given that orthostatic intolerance is a key symptom of ME/CFS. The familiarization concept is odd...
Yep, the calcium channelopathy theory appears pretty solid and new research findings by others are all fitting in with the theory. Chemical, food...
When will Action4ME start working for ME patients? The PACE trial issues are not a lack of consensus issue. A lack of consensus needs at least...
Yes that is my worry. There is some pretty dodgy research that twists biology into a psychosocial pretzel.
Do we really want the post exposure to things that trigger an exacerbation of ME/CFS symptoms to be called post exertional malaise or does this...
I dont find fatigue an effective way of measuring my health other symptoms are much easier to rate and monitor as is my morning restin heart rate
Defining PEM is easy but measuring it subjectively and its frequency can be meaningless and fraught with misinterpretation. The NAM description...
I've found that I can enjoy and feel good after exercise despite the fact that I will suffer PEM later in fact the more I overdo it the more...
I'm a bit confused as teh questionaire didn't ahve NAM which i wouldl have choosen over IOM.
A definition can be multi faceted. I see heart rate data as a second tier of information and not the primary definition but for people pacing and...
I like the term exertion as to me it means anything that is not resting and it includes physical and cognitive - the other triggers need to be...
Me too- I get little warning signs now that I am tuned into my body with PEM hitting like a truck on day 3 if I ignore Day 1's warning signs. On...
Don't all patients experience PEM if they over exert and/or are exposed to triggers.
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