It really has been a long wait (25 years for me) for any attention to be paid to ME/CFS. Too bad that it has taken a deadly pandemic to force the NiH and the NIAID to look our way. I suspect Collins and Fauci are not happy about it. It's going to be interesting to see how long Covid plays out...
I've had ME for 25 years. For the last 5 years, I'v been drawing cartoons about the people, issues and events associated with ME. I just finished my 18th cartoon.
Some of the cartoons have appeared from time to time on this website. If you would like to see all of the cartoons, they are...
The best thing doctors who are having trouble communicating with their ME/CFS patients could do is to spend some time reading the latest research so they would actually have something to communicate.
Here's my salute to Francis Collins who happily took credit for the research using the nanoneedle that found a blood marker for ME.
According to Janet Dafoe, "That NIH grant was TERMINATED about 2 years ago because NIH said they didn't want to fund that technology anymore. That grant had...
Thanks to Jennie for another brilliant article! Looking forward to part two where she will talk about what we can do about the pace of ME/CFS research at the NIH. In the meantime, I just keep drawing pictures....sigh. 28 years and counting.
I was surprised to see her name on this paper. Last I heard, she had left Seattle to work at Washington State University where she is (was?) a professor of public health and with an emphasis on Native American health.
I was hoping that she had left the ME/CFS research field permanently. Many...
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