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  1. H

    Built Me/Cfs safe room in the bush at the back of a house. Design help/suggestions.

    I just got news that connecting to a sewer is about 25000 bucks! That is before you build the toilet.
  2. H

    Built Me/Cfs safe room in the bush at the back of a house. Design help/suggestions.

    This is sort of what I was aiming for but more in the bush/garden/srubs.
  3. H

    Built Me/Cfs safe room in the bush at the back of a house. Design help/suggestions.

    The above idea would be applicable. My down stairs room has heating but not A/C. So the idea to go to this new room in the garden when is severely hot is probably what I want. If I didn’t use it other people would still use it. The trip to the bathroom is ok for me.
  4. H

    Built Me/Cfs safe room in the bush at the back of a house. Design help/suggestions.

    Yes the room would have bulletproof insulation, heating and cooling to be comfortable. The latest generation ac’s are pretty much silent.
  5. H

    Built Me/Cfs safe room in the bush at the back of a house. Design help/suggestions.

    Unfortunately a shipping container would look most out of place with the house so I was more looking for traditional construction process that doesn’t look different to the house. But people in this area do that and it is more for storage than a nice room.
  6. H

    Built Me/Cfs safe room in the bush at the back of a house. Design help/suggestions.

    I think it is quite hard to sound proof an existing noisey house. This one anyway. But the lack of toilet is a problem with my plan.
  7. H

    Built Me/Cfs safe room in the bush at the back of a house. Design help/suggestions.

    So I am not usually that severe that i cannot travel the small distance to the toilet. But that is a problem as it would be better if it was an actual small guest house with a toilet. Unfortunately it would add significant cost as it would have to be council approved. The rest of what you have...
  8. H

    Built Me/Cfs safe room in the bush at the back of a house. Design help/suggestions.

    Wheelchair access is not a problem as there will be a path and straight entry from the main house to the ‘room’. I am thinking of a built one not off the shelves one. Fire resistance rules are that it cannot be wood cladding which is easier enough these days as a lot of wood looking alternatives...
  9. H

    Built Me/Cfs safe room in the bush at the back of a house. Design help/suggestions.

    This is a bit of an odd post. I am maybe thinking of getting built a new shed or single room at the back of a property that is friendly to a Me/Cfs patient if they are quite severe. Meaning that it would be a 10 meter square room that is pretty sound and light proof and is sort of in the bush(...
  10. H

    USA - Mayo clinic

    I have read through it and from memory cannot remember anything that has been changed or added.
  11. H

    Open Norway: Plasma cell aimed treatment with daratumumab in ME/CFS (ResetME) - Haukeland University Hospital

    Pretty much sums up the situation. Not sure there is much else as far as possible breakthrough treatment in the next few years.
  12. H

    The Born Free Protocol

    Wow. If that is real that is grubby stuff.
  13. H

    Low Vasopressin In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2025, Huhmar/Bragée/Polo

    I have been thinking about this thread across the new year since I have always had extreme thirst since I have had severe ME/CFS. Has anyone here been diagnosed with Diabetes Insipidus or has been prescribed Desmopressin and had response for their symptoms?
  14. H

    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    No no, I understand and believe you period. I just find it really sad.
  15. H

    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    The references to medical units being shut down and that patients should not be seen with ME/CFS is literally the saddest post I have ever read on this forum. It is believable but all can be hoped is that it is in the past and BPS propaganda has had a light shone on it and will not go unchecked...
  16. H

    Coping with heat

    It is only survivable for ME with good A/c and that hopefully it does not go on for days above 40. At least where I am the humidity is low. The heat soak in the buildings when it goes on for days is bad.
  17. H

    Coping with heat

    Hi, yes the humidity was low yesterday which is better than some times when you are dripping. I will look into the cooling vest because when you are at the end of the day the A/C gives up.
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