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  1. Willow
    Post

    UK: Aberdeen Uni: Major new study aims to increase understanding of fatigue

    This is exactly where my fear is coming from, @JemPD
    Post by: Willow, May 28, 2023 in forum: Long Covid news
  2. Willow
    Post

    UK: Aberdeen Uni: Major new study aims to increase understanding of fatigue

    We'll see what comes from it. Hopefully it won't be along the lines of Chalder, Moss-Morris, White, Crawley, et al. You know, the "experts."...
    Post by: Willow, May 28, 2023 in forum: Long Covid news
  3. Willow
    Post

    Uplifts and hassles are related to worsening in chronic fatigue syndrome A prospective study, 2023, Friedberg et al

    I can't believe that Friedberg keeps getting funding for this kind of stuff, from the NIH no less. The NIH must have money to burn, it seems....
    Post by: Willow, May 20, 2023 in forum: ME/CFS research
  4. Willow
    Post

    USA: News from Solve ME

    CFS, as it was known then, was originally housed in the National Institute of Allergy and Infectious Diseases (NIAID) until it was thrown out from...
    Post by: Willow, May 20, 2023 in forum: News from organisations
  5. Willow
    Post

    ME/CFS Medical Education Campaign UK - UK website and blog by Katie Johnstone

    Or when you go to your primary care physician who concludes you are depressed when you are not.
    Post by: Willow, May 8, 2023 in forum: Advocacy Projects and Campaigns
  6. Willow
    Post

    Framework for systematic reviews on psychological risk factors for persistent somatic symptoms & related syndromes & disorders (PSY-PSS) 2023 Hüsing

    Psy-pss and PSS-POR. :laugh: :rofl: :D :grinning: :joy: So appropriate! Thanks, NelliePledge and Hutan. Laughed out loud. Just what I...
    Post by: Willow, Apr 27, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Willow
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    David Tuller wrote about these Dutch research funding awards in his last two publications. I quote from one of his articles: "Last July, ZonMw...
    Post by: Willow, Apr 27, 2023 in forum: ME/CFS research news
  8. Willow
    Post

    Functional neurological disorder: Clinical manifestations and comorbidities; an online survey 2023 Ducroizet, Edwards et al

    Sure sounds like it to me.
    Post by: Willow, Mar 7, 2023 in forum: Other psychosomatic news and research
  9. Willow
    Post

    'Digital antidepressants' to be rolled out on the NHS as health bosses give eight apps and web-based therapy courses the green light

    Spot on! This is exactly what they do. The first time I came across this was some years ago when I first began educating myself about ME/CFS. I...
    Post by: Willow, Mar 5, 2023 in forum: Other health news and research
  10. Willow
    Post

    USA: Cleveland Clinic

    I also was told that it would take 12 - 18 months for me to recover. One of my regrets is that I told that to some people around me. Of course,...
    Post by: Willow, Mar 5, 2023 in forum: USA clinics and doctors
  11. Willow
    Post

    Severe difficulties with eating in ME/CFS

    This whole situation is greatly distressing. I weep for us and for all future patients that may face this runaway push in medicine. It seems to...
    Post by: Willow, Feb 26, 2023 in forum: ME/CFS research
  12. Willow
    Post

    Podcast BBC OU: The misdiagnosis that sent me to psychiatric hospital

    I am so sick and tired of recent and fairly recent publications on ME/CFS, Long-Covid, and similar diseases throwing in the words "depression,"...
    Post by: Willow, Jan 9, 2023 in forum: Other psychosomatic news and research
  13. Willow
    Post

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    Thank you. Signed.
    Post by: Willow, Jan 6, 2023 in forum: Psychosomatic news - ME/CFS and Long Covid
  14. Willow
    Post

    Trisha Greenhalgh on ME/CFS and Long Covid

    It seems to me that they are making it up as they go along, which only makes me have less trust in the medical profession than I already had.
    Post by: Willow, Jan 3, 2023 in forum: UK clinics and doctors
  15. Willow
    Post

    From academic success to cognitive disability

    :hug: Beautifully written. Thank you @Subtropical Island.
    Post by: Willow, Dec 9, 2022 in forum: General ME/CFS discussion
  16. Willow
    Post

    From academic success to cognitive disability

    After struggling for many years with ME/CFS with a gradual downward progression, it was severe cognitive problems that made me finally quit my...
    Post by: Willow, Dec 8, 2022 in forum: General ME/CFS discussion
  17. Willow
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    Barry, in the U.S. we have Forever Stamps and they say "forever" on them. It doesn't mean "America Forever," but rather these forever stamps can...
    Post by: Willow, Nov 8, 2022 in forum: Fundraising
  18. Willow
    Post

    ME/CFS services in the United Kingdom

    Yes, I would really like to know what their "rehabilitation programs" consist of.
    Post by: Willow, Nov 3, 2022 in forum: UK clinics and doctors
  19. Willow
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Whenever I read this statement, I get a picture in my head of "an ME/CFS specialist clinician" waving a magic wand (only they have) over the...
    Post by: Willow, Aug 20, 2022 in forum: News from organisations
  20. Willow
    Post

    Phaeochromocytoma and adrenalectomy

    Hope all goes well for you. Wishing you all the best.
    Post by: Willow, Aug 11, 2022 in forum: Endocrine: Thyroid, Adrenal, Diabetes
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