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  1. Milo
    Thread

    Identification of distinct subgroups of Sjögren's disease by cluster analysis based on clinical and biological manifestations... (2024) Nguyen et al.

    Full title: Identification of distinct subgroups of Sjögren's disease by cluster analysis based on clinical and biological manifestations: data...
    Thread by: Milo, Mar 28, 2024, 1 replies, in forum: 'Conditions related to ME/CFS' news and research
  2. Milo
    Post

    News from Canada

    Yes, yes, yes.
    Post by: Milo, Mar 25, 2024 in forum: Regional news
  3. Milo
    Post

    Preprint Changing patterns of multimorbidity among patients with ambiguous diagnoses: case of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2024, Bragée

    It has been my experience and also general knowledge that family doctors are typically not interested in so called benign viral infections. We...
    Post by: Milo, Mar 13, 2024 in forum: ME/CFS research
  4. Milo
    Post

    Rice cookers?

    Instant Pot is good for so many things including cooking rice by itself, rice with meat, soups, stews, hard boiled eggs, etc. I now use it more...
    Post by: Milo, Feb 17, 2024 in forum: Home adaptations, mobility and personal care
  5. Milo
    Post

    Open Fred Friedberg (University of Stonybrook) Hydrogen Rich Water; Heart rate variability biofeedback in CFS

    Eeeeeeeek. What’s next? Coconut water and fairy dust? Edit: Holy water is where it’s at :banghead:
    Post by: Milo, Feb 11, 2024 in forum: Recruitment into current ME/CFS research studies
  6. Milo
    Post

    UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024

    So tired of ‘fighting’.
    Post by: Milo, Feb 10, 2024 in forum: ME/CFS research news
  7. Milo
    Post

    Preprint Unequal access to diagnosis of myalgic encephalomyelitis in England, 2024, Ponting and Samms

    In my province (unsure about the other ones) we are still at ICD-9 when it comes to coding. We are simply not counted by the health care system,...
    Post by: Milo, Feb 8, 2024 in forum: ME/CFS research
  8. Milo
    Post

    Chronic fatigue syndrome and its response to the use of a multimodal antidepressant, 2023, Burca

    Are you kidding me? ….Fear of failing syndrome… Emotional instability in the form of easy crying… wow. A doozie.
    Post by: Milo, Feb 7, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Milo
    Post

    Protocol for a scoping review of how people with ME/CFS use the internet (2024) Shortland et al.

    What is concerning to me is that they won’t stop at a literature, review. They will then move on to social media and explore activism and perhaps...
    Post by: Milo, Jan 31, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Milo
    Post

    Protocol for a scoping review of how people with ME/CFS use the internet (2024) Shortland et al.

    Following the new NICE guidelines and following the James Lind Alliance project trying to establish research priorities for ME, I wonder what part...
    Post by: Milo, Jan 31, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Milo
    Thread

    Protocol for a scoping review of how people with ME/CFS use the internet (2024) Shortland et al.

    Abstract Introduction: Myalgic encephalomyelitis (ME) is a chronic neurological illness affecting many bodily systems, commonly the nervous and...
    Thread by: Milo, Jan 31, 2024, 17 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Milo
    Thread

    Joint Flexibility and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome After Mononucleosis (2024) Poomkudy et al.

    Joint Flexibility and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome After Mononucleosis (co-authors include Drs Lenny Jason and Benjamen...
    Thread by: Milo, Jan 18, 2024, 2 replies, in forum: ME/CFS research
  13. Milo
    Thread

    Knowledge on cause, clinical manifestation and treatment for fibromyalgia among medical doctors: A worldwide survey (2023) VanWilgen et al

    Knowledge on cause, clinical manifestation and treatment for fibromyalgia among medical doctors: A worldwide survey Abstract Objectives: Hench...
    Thread by: Milo, Jan 10, 2024, 0 replies, in forum: 'Conditions related to ME/CFS' news and research
  14. Milo
    Post

    Identification of CD8 T-cell dysfunction associated with symptoms in [ME/CFS] and Long COVID and treatment with a nebulized ... 2023 Gil et al

    [MEDIA] [MEDIA] Red flags.
    Post by: Milo, Jan 4, 2024 in forum: ME/CFS research
  15. Milo
    Post

    New Alcohol Sensitivity in Patients With Post-acute Sequelae of SARS-CoV-2 PASC: A Case Series, 2023, Eastin, Bonila et al.

    Would love to know what citation you can come up with. The thing with the history of ME is that we have suffered from dreadful stigma and poor to...
    Post by: Milo, Jan 1, 2024 in forum: Long Covid research
  16. Milo
    Post

    A thread to talk about muscle biopsies

    Google says: In the simplest terms, fast-twitch (type II) muscle fibers are built for short, powerful bursts of energy—that's in contrast to...
    Post by: Milo, Dec 14, 2023 in forum: Laboratory and genetic testing, medical imaging
  17. Milo
    Post

    Long term sequelae following previous coronavirus epidemics O’Sullivan November 2020

    It begs for 2follow up studies: ‘Where are they now?’ and ‘Do they trust us to even call them again?’
    Post by: Milo, Dec 14, 2023 in forum: Long Covid research
  18. Milo
    Post

    Diane O'Leary, philosopher, media articles and interviews

    Perhaps the abuse is by neglect and neglect takes many forms, organized and not organized. And I am surprised to hear she is not Canadian....
    Post by: Milo, Nov 28, 2023 in forum: General ME/CFS news
  19. Milo
    Post

    Diane O'Leary, philosopher, media articles and interviews

    It is my understanding that she is Canadian and may not understand the blatant abuse that happens in the UK. She may not be in tune about what is...
    Post by: Milo, Nov 28, 2023 in forum: General ME/CFS news
  20. Milo
    Post

    UK: Recruiting: Inflammation and brain function in Functional Neurological Disorder: implications for diagnosis and treatment: Study 1

    Oh by the way the hospital lost, and has to pay 50+ million to her and her family. Her treatment caused her mom to commit suicide.
    Post by: Milo, Nov 26, 2023 in forum: Other psychosomatic news and research
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