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Fact Sheet 3: ME/CFS: Information for Medical Professionals Published December 2025 Link to pdf: ME/CFS: Information for Medical Professionals.pdf Discussion thread: Fact sheet #3: Information for Medical Professionals, December 2025, discussion ME/CFS (myalgic encephalomyelitis/chronic...

Fact Sheet 2: Post-exertional malaise (PEM) Published May 2025 Link to pdf: PEM_Factsheet.pdf Link to pdf of French translation: Malaise_post_effort-S4ME-Feuille_information.pdf Discussion thread: Fact sheet #2 Post-exertional malaise (PEM), May 2025 discussion Post-exertional malaise (PEM)...

Received by email 29th April 2025: ___________________ Decision on Appeal #COMP00196177 Dear Trish Davis, Thank you for sharing your concerns and for your patience while we investigated this matter. We have now assessed your Appeal #COMP00196177, submitted on 26th February 2025, regarding...

Petition update Some small changes for the better 28 Mar 2025 An updated editorial note Cochrane has again amended the editorial note on the Larun et al review. The Editorial Note is now: Editorial Note (19 December 2024; amended 31 January 2025; amended 25 March 2025): "This Cochrane review...

PETITION UPDATE Some small changes for the better 28 Mar 2025 An updated editorial note Cochrane has again amended the editorial note on the Larun et al review. The Editorial Note is now: Editorial Note (19 December 2024; amended 31 January 2025; amended 25 March 2025): "This Cochrane review...

Fact Sheet 1: Introduction to ME/CFS Published March 2025 Link to pdf: Introduction to ME/CFS - S4ME-Factsheet.pdf Link to pdf of French translation: Introduction_à_l_EMSCF-S4ME-Feuille_information Discussion thread: Fact sheet #1- Introduction to ME/CFS March 2025 Discussion Introduction to...

The Science for ME committee and members are running a project to develop fact sheets about aspects of ME/CFS. These are being developed in consultation with the forum membership, with the aim of providing information that is both helpful and well based in evidence. As each fact sheet is...

Another appeal submitted to Cochrane On 5th February 2025 the S4ME committee submitted a detailed set of complaints to Cochrane related to their actions in December 2024. The decision on our compaint which we received on 3rd March is in the post above this one. We have today submitted a formal...

Open for members: Factsheet #2 - PEM - draft for discussion. Thread closes 31st March 2025

This post refers to our formal complaint about republication of the Larun 2019 review as if it were a new review dated 2024. A copy of the complaint was posted here: https://www.s4me.info/threads/s4me-...rcise-therapy-review.34973/page-3#post-585637 Received today, 3rd March 2025 at 14.31...

An announcement about how to contribute to Factsheet 2 on PEM (post-exertional malaise) can be seen by members here: The Factsheet project. Edit: First draft ready for feedback: https://www.s4me.info/threads/the-factsheet-project.42171/page-5#post-591960

The S4ME committee has today, 26th February 2024, submitted an appeal to the decision we received on 14th February 2024. The decision refers to our complaint submitted on 26th January 2025 which was about the lack of response to our letters and complaints dating back to October 2023 and March...

PETITION UPDATE Cochrane: Withdraw the harmful 2019/2024 Exercise therapy for CFS review Cochrane responds to our 2023 complaints 23 Feb 2025 In this update, we tell you about a video from one of the leading YouTube science channels about exercise and ME/CFS, and about researchers and...

Received by email from Cochrane today, 14th February 2025 New reply for your query (ticket #COMP00192844) Dear Trish Davis, This response relates to your complaint received on 26thJanuary 2025 relating to the published Cochrane review ‘Exercise therapy for chronic fatigue syndrome’...

PETITION UPDATE Significant revelations 10 Feb 2025 Significant revelations from a German investigative journalist In a detailed article in German, Martin Rücker, part of RiffReporter, presented some extraordinary findings from his investigation of the Cochrane story. He reported that Cochrane...

... continued from previous post. Part C: Outdated comparison claiming agreement with other reviews The Review states: "Moreover, the results reported here correspond well with those of other systematic reviews (Bagnall 2002; Larun 2011; Prins 2006) and with existing guidelines (NICE 2007)."...

The S4ME committee has today submitted the following set of complaints to the Cochrane official complaints process. For discussion, go to this thread: 2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles It's long so has...

PETITION UPDATE More publicity Cochrane won't want to see 1 Feb 2025 The public response to Cochrane's 17th December announcement of the abandonment of the replacement review process has been building and all of it has been critical. We share some of the responses here, with more to follow in...

PETITION UPDATE https://www.change.org/p/cochrane-withdraw-the-harmful-2019-2024-exercise-therapy-for-cfs-review/u/33210062 More publicity Cochrane won't want to see 1 Feb 2025 The public response to Cochrane's 17th December announcement of the abandonment of the replacement review process...

The draft of the first factsheet, What is ME/CFS? is now available for members to comment.