I think the severe figures , if 25% are way more than 10 000. However it’s going to be primarily in the very severe/ bordering on extreme cases...
It probably wouldn’t be recorded as few with severe ME have specialist care, or research, GPs never view or interpret m.e medical terms. In my...
for me the issues are not just arising from immobility, but I think hyper Tone, spasticity, the type of issues seen in neurological conditions. I...
I'm confused about this study. Does it actually count only those with post-exertional malaise m.e versus the wider Chronic Fatigue syndrome /...
Before the mental health platform formation, The ME association had put in its DHSC delivery plan proposal something like the dementia platform...
Does the fact this is being put out as a campaign after the March the delivery plan was expected to publish and several months after these behind...
From the PSP top 10 website Looking at the psp document regarding the hubs, this priority doesn't have a place? i wonder how was it decided to...
it has been the brazen 2 tier efforts for m.e compared to long covid - ie don’t you worry, ofcourse we are taking long covid seriously and as...
I would like to Know how much funding is being asked for over the 5 year period, this type of £20m or would that just be the set up starting costs?
How much funding are you hoping / asking for?
To be honest it sounds very m.e type but no post-exertional malaise mentioned so unclear. Everything else I’ve heard of in severe me. I have...
If the doctors associated don’t prescribe (many who are severe, in contrast to what may be accepted here, do want to access to off label meds) and...
like trying to make the stigmatised & untaught m.e research field flourish and compete unaided , this has already been tried and demonstrably...
Trump withholding university funds until they please him mentions Columbia [MEDIA] Trumps covid cuts https://www.bmj.com/content/388/bmj.r636/rr
Details of DC protest
Totally unacceptable isn’t it? I mean what a joke
I wrote this on their Facebook: Regarding research, are you just counting long Covid research as being a worthy and full substitute for m.e...
the ministers representative response the palm of the hand https://carolinelucas.com/sites/carolinelucas.com/files/ML.N0070.CM_.13.7.18.reply_.pdf
Caroline wrote this excellent letter to minister brine in 2018...
https://www.newstatesman.com/podcasts/insight-podcast/2025/03/are-we-living-through-an-overdiagnosis-epidemic Long section on Lyme disease in...
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