& if they don't? What if all the commission boards decide that m.e in never-ending tough times isn't their priority? Is that just okay? What has...
The APPG report on nhs services in 2010 said: NHS England in its only stock take I am aware of , in 2025 are reporting problematic variation,...
I can’t as I’m not a member and this was just posted as an excerpt for wider access and is presumably for members only but maybe other people can...
Which they are now going to be doing. New for this org, MEA, & very overdue, too late for me, from a charity that's seemed incapable of...
Clearly if nath / NIH had bothered to fully believe in & investigate this "Chronic Fatigue syndrom e" In the decades before now, these new health...
I couldn’t see this here, regarding the DHSC delivery plan: “Observations from and following the final meeting of the UKCRC ME Research Working...
Afaiu, the protest regarding NIcE was regarding the set up of the panel. This was in a targeted way from #MEAction only, so was unsucccessful in...
I think Calling the illness m,e versus Chronic Fatigue syndrome is Something probably all those who are severely affected do. I’m not going to...
with with no funding, it can't be anything other than dreadful. the lives of m.e have been too wasted for them to keep taking time for reports...
Yes, the NICE guidelines wording will have been carefully argued and presumably the paragraph "services may include:" followed by a whole list of...
The Nice guidelines are not based on the medical care model tho?, or physician-led services so the two things are contradictory? We have either...
no. I don’t think that meets the needs of the severely affected who may need an ongoing range of support eg joint care , emotional support /...
I think that the severe require A specified suite of therapists Accessible as required in some regions, *as well as physician-led services* to...
buying a new bigger gaslamp. I disagree with framing a majority desire for substantial action for the government as “the” problem. For most,...
I would estimate that this would be a very minority view in the wider ME/CFS affected population
Dr Charles Shepherd words on subject
Death isn’t inevitable with tube feeding & Dr Strain had no expertise to base such assertions on afaic . I’ve been tube fed twenty years and got...
I'm surprised that Amy, who I believe had some mild post-viral syndrome once, is framing long-covid like hiv, presumably because of her belief...
About time someone did.
London gives Simon Wessely among 40 others another award for outstanding contribution...
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