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  1. Shinygleamy

    Aripiprazole - Abilify

    Is there any long term issues taking 2.5mg of abilify. I feel it's made my sleep more restorative, and rather than being stuck thinking about doing something I can just do it. Wondering if the benefits are worth the possible long term side effects.
  2. Shinygleamy

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    I just recently got done by a psychiatrist who I'd known for over a year. He suddenly put mus on me because I wanted a second opinion for treatment of another health condition. Would have been better never to have discussed anything with him
  3. Shinygleamy

    News from Scotland

    I still think of Sharpe and his 'boom time' for business, and that was before long covid. They must still be contemplating the pounds that could roll in. Though this time the sheer weight of numbers is likely to show up the emperors new clothes for what they are.
  4. Shinygleamy

    BMJ: Chronic fatigue syndrome and Long Covid, moving beyond the controversy, 2021, Newman

    Funny how he doesn't actually refute that his research study was made up. As far as I know Sharpe went to Edinburgh to set up a cbt and get clinic. Not to abandon the field at all.
  5. Shinygleamy

    Aripiprazole - Abilify

    Yes i was prescribed it in the uk as an add on, to my anti depressant, for depression. I think you have to put the potential dangers of using it into context. I lot of meds can cause severe side effects and are used without any concern at all. I was given a drug for stomach function that could...
  6. Shinygleamy

    BPS attempts at psychologizing Long Covid

    They really are societal leeches. Though an actual leech is a hundred times more useful.
  7. Shinygleamy

    BPS attempts at psychologizing Long Covid

    I read binkie for physicians as bikini , maybe that also works, an inadequate swimsuit, barely holding things in, seriously dodgy.
  8. Shinygleamy

    Labelling Long COVID and ME/CFS symptoms in children 'mental health'

    There is, I feel, a lot of pressure in the system to label covid kids as having a mental problem. The British government's covid policies had a heavy emphasis on children being safe from the disease and that they should return to school because of it. The acknowledgement that kids are being...
  9. Shinygleamy

    Clare Gerada: influence on UK medical practice and ME/CFS management

    It's called the 'this is me thinking' photo :emoji_thinking:<(this emoji is just as good)
  10. Shinygleamy

    Clare Gerada: influence on UK medical practice and ME/CFS management

    Don't worry, she'll no doubt make sure to undermine their position in every way. Two years later they'll be wondering what the heck happened.
  11. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    My feeling is that Collins is not the problem and that there is extreme hostility within the NIH, from certain individuals. Like in the uk if you go near ME say goodbye to your career.
  12. Shinygleamy

    Guardian: Long Covid is very far from ‘all in the mind’ – but psychology can still help us treat it - by Carmine M Pariante, April 2021

    Disingenuous, I'm sure he's intelligent enough to know exactly what the differance is. Cancer folks are not having their cancer treated with physchotheraputic approaches, they're having surgery and chemotherapy. M.e. folks are denied any treatments under the dogma that cbt, graded exercise will...
  13. Shinygleamy

    Aripiprazole - Abilify

    I've just started taking it. One 16th of a 5mg pill. Every second day. It's been a bit rough as I'm so sensitive to medications, not feeling well, not able to do my usual but bearable. My doctor thought maybe day on day off might be making it worse so from tomorrow going to take every day.
  14. Shinygleamy

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Pesky details. You're not supposed to check.
  15. Shinygleamy

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    I think it's because him and his chums have gotten away with outrageous behaviour before and have never been punished for it. It makes a person very sloppy.
  16. Shinygleamy

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    That's how I used to breath after physical exertion in the early days of my m.e. just couldn't catch my breath and I was super fit
  17. Shinygleamy

    Life-Threatening Malnutrition in Very Severe ME/CFS, 2021, Baxter, Speight, Weir

    They do. It's certainly been the case for me, my mum and my two brothers over the years
  18. Shinygleamy

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    It's what I noticed, although we're labeled as a mental health problem it's important to recognise we're not treated as mentally ill people are. Nor are we allowed any if the services available to the mentally ill. We've fallen down a crack outside of usual practice. Which is as Wessely and Co...
  19. Shinygleamy

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think Garner had connections with the BPs lot before this whole thing happened, and he's now showing what he always believed
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