Thanks for suggesting using Notebook LM podcast feature to access research studies. I've found that particular feature very useful for other...
Couldn't see this posted elsewhere - Primary Care Infographic...
Jeremy was very calm and patient when photographing. He moved carefully and deliberately. He talked as much as I wanted to and was happy with...
Interesting discussion. Excellent points about how services are designed especially @Haveyoutriedyoga .Thank you. A barrier to service...
@SteveFifield I don't know if you saw this in the Visible app but there is a bit more information on the impact and intensity of tagged...
From a personal perspective I really like Visible. The free version is of limited use as it is just a snapshot at one point in time in the day....
Welcome @SteveFifield You might find this webpage helpful regarding PacePoints https://hrm4pacing.wordpress.com/visible/
Publication date of their book is 21 August £26.99 with an e-book version....
In our HRM pacing FB group PwME & LC tend to use 220 - age x 55% or 50% for the more severely affected. But also RHR plus 10 - 15. It's very...
The invoices seem to be sent on a monthly cycle, so you might get it quickly (or not) depending on the date of your appointment. Sorry not to be...
I've had a video appointment with Dr Barham. She was excellent, good understanding of M.E., didn't rush me, extremely thorough, comprehensive...
December 2022 Guidance for Primary Care https://bacme.info/wp-content/uploads/2022/12/BACME-Primary-Care-Guide-to-MECFS.pdf
Great thread I'm in the process of putting together resources for health professionals as part of service development in Suffolk. We've...
Work is continuing to develop a new M.E. and CFS Service in Suffolk and North East Essex. A survey has been created which is focused on...
Full evaluation report is here https://www.weahsn.net/wp-content/uploads/2021/12/The-Future-Challenges-Replenish-ME-FINAL.pdf Has anyone heard...
Consensus statement Benefits outweigh the risks: a consensus statement on the risks of physical activity for people living with long-term...
Exactly @Sasha, excellent point, thank you.
I was involved in creating this survey. Thanks for your interest. I'd say complete the survey if you can. Part of the aim of the survey is to...
The survey has 40 questions, virtually all with tick boxes / radio buttons to make the questions easier to answer. There are some free text...
@MEMarge Sorry for the omission - the email was sent by Helen Winning, CEO of the M.E. Trust.
Separate names with a comma.
