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Yes it does show how much the LC community still has to learn.

Sorry I wasn't clear. What I said was just paraphrased from the very short message on the app. There is a longer message from Harry at visible on Reddit which I hope you can see ok. It's a pretty good mea culpa. https://www.reddit.com/r/cfs/s/o8G9xOhcHM (Edited for spelling)

Short message on the app that the clinical trials feature has been temporarily removed so that Visible can implement changes to ensure it's working in the best interests of the patient community.

Re the C4 piece: There is also the discussion afterwards which is well worth watching, good points made by Teresa Munt MP. She mentioned that the Delivery Plan was a flop. People with M.E. desperate to lead a normal life. Decades of being treated poorly. People living in darkened rooms. People...

Piece in the East Anglian Daily Times.https://www.eadt.co.uk/news/national/25371230.people-key-genetic-differences-people-study-finds/

I've been using Visible with the armband for over a year now. It's a shame that the free version and the armband version aren't differentiated better because i think that people are comparing apples and oranges. The free version can be helpful for recording symptoms, but I think the morning...

ME Association response to the Delivery Plan https://meassociation.org.uk/2025/07/the-me-associations-statement-on-the-governments-delivery-plan-on-me-cfs/

The MEA have put up a piece about the press release: https://meassociation.org.uk/2025/07/gov-uk-issues-a-press-release-that-the-delivery-plan-on-me-cfs-has-been-published/

Segment on BBC Breakfast with Sarah Boothby O'Neil and Dr Kane from 07:13am. ETA: You can easily watch it on the iPlayer app at the moment by going back to 7:13am and the start of the piece.

Is the link to the actual Delivery Plan to be published later?

Thanks for suggesting using Notebook LM podcast feature to access research studies. I've found that particular feature very useful for other things, but hadn't thought of using it on research papers. I've found Gemini very useful when writing letters etc, I can put in a rough paragraph and it...

Couldn't see this posted elsewhere - Primary Care Infographic https://meassociation.org.uk/literature/items/primary-care-infographic-for-healthcare-professionals/ A comprehensive infographic with expert information from Dr Charles Shepherd (Honorary Medical Adviser to the ME Association) to...

Jeremy was very calm and patient when photographing. He moved carefully and deliberately. He talked as much as I wanted to and was happy with silence when my stamina deserted me. Jeremy has travelled many miles round the country putting this together. The result is a clear narrative. Well done...

Interesting discussion. Excellent points about how services are designed especially @Haveyoutriedyoga .Thank you. A barrier to service development generally is that provider information is commercially sensitive, this inhibits open discussion about proposals for the new service. Another barrier...

@SteveFifield I don't know if you saw this in the Visible app but there is a bit more information on the impact and intensity of tagged activities. On the HR graph screen tap Activity Insights and you can toggle between Impact / Intensity of tagged activities. If you tap the information ℹ️ at...

From a personal perspective I really like Visible. The free version is of limited use as it is just a snapshot at one point in time in the day. But the last couple of weeks I've had the upgraded version with the polar armband. I've been pacing with a Garmin for years, and have a good idea of...

Welcome @SteveFifield You might find this webpage helpful regarding PacePoints https://hrm4pacing.wordpress.com/visible/

Publication date of their book is 21 August £26.99 with an e-book version. https://uk.jkp.com/products/a-physiotherapists-guide-to-understanding-and-managing-mecfs

In our HRM pacing FB group PwME & LC tend to use 220 - age x 55% or 50% for the more severely affected. But also RHR plus 10 - 15. It's very helpful to keep brief records of physical, cognitive, social and emotional activity, along with any stressors such as allergies, sensitivities, hormonal...

The invoices seem to be sent on a monthly cycle, so you might get it quickly (or not) depending on the date of your appointment. Sorry not to be clear, I meant AfME are slow to respond to messages and to send out reports. It's such a shame as the MET were great, and they have been swallowed up...