we informed the global community on a regular basis (once every 3 months) on both topics via the ME Global Chronicle and will continue to do so, so to avoid double work and waste of precious energy, it would suffice to post links to articles in the published issues. But I want to make sure this...
there is much more to report about the Dutch ZonMw-research program and the protests against it, but I wonder where that should be posted. As a reminder: I happened to be a member of the ad hoc ME/CFS committee of the Dutch Health Council producing their advisory report in March 2018, as well as...
this is what the reporter who created the broadcast announced:
"We do recount the entire run-up to the grant program (starting with the Citizens' Initiative) and show how gradually resentment develops among three of the four patient organizations (ZonMw scaling down voting rights into advisory...
until subgroups of patients have been clearly defined (in one of them the HPA-axis playing the real havoc) it is risky to enter into such an experience as it may disturb the 'illness-balance' enhancing the symptoms caused by dysfunctions in other bodily systems
very little substantial research...
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