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  1. J

    Obituary of Lord Lloyd of Berwick, The Times (London), 21/12/2024

    Posting because of this reference to Gulf War Syndrome: That respect led him to be appointed to positions that demanded a sensitive touch: they included chairing an inquiry into legislation against terrorism in 1996 and the inquiry into Gulf War syndrome, set up in 2004. This was established...
  2. J

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Has any contact been made with Iain Chalmers? It might be worth a try. He would at least carry moral weight.
  3. J

    JK Rowling new book — chronic illness references

    'Executive producer' often means very little. It's a way of giving star actors, and in this case writer, a slice of recognition and possibly of profits, but it doesn't necessarily mean they played much of a role in the actual production.
  4. J

    Lightning Process - discussion thread

    Sorry, the 'as well' was a brain typo.
  5. J

    Lightning Process - discussion thread

    Excellent comments as well. ETA Please ignore 'as well'. Yes, they are excellent.
  6. J

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    They're going to do a survey. Potentially I could get solar panels and an air pump heater, fully paid.
  7. J

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Yes, and seems actually to have looked for a way to make it qualify.
  8. J

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Well, I think I've had a result but am not sure yet. The Welsh government runs a 'Warm Home' scheme with some quite big grants available. I think for some they will install solar panels and air-source heat pumps. Eligibility is quite limited, depending first on the house's EPC rating. If it's...
  9. J

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Charles Shepherd's reply to Thursday's article in letter in Times today.
  10. J

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    OK, thanks. That makes sense, as I heard from another source that they had the four officers necessary.
  11. J

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    I'm referring to Malcolm, of course. https://www.s4me.info/threads/uk-all-party-parliamentary-group-appg-on-me-news-2020-onward.16996/page-13#post-554468
  12. J

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    The new chairman of Rangers football club was in contact with me over the weekend after I sent him a briefing note a couple of weeks ago. He thinks it's 'incredible to think that 40 years of science has not been able to make any viable improvements to ME patients' lives' and has asked me to put...
  13. J

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Where does it say on the website who the chair is? The agenda for the meeting includes an election of the chair.
  14. J

    Trisha Greenhalgh on ME/CFS and Long Covid

    I'll do so in future.
  15. J

    Trisha Greenhalgh on ME/CFS and Long Covid

    New post on Bluesky by her on the BJGP paper. https://bsky.app/profile/trishgreenhalgh.bsky.social/post/3lc3chlb67s2u
  16. J

    United Kingdom: ME Association governance issues

    Sheene then cured himself with cold baths. Apparently.
  17. J

    Trisha Greenhalgh on ME/CFS and Long Covid

    Yes, and in keeping with the mental gymnastics they've been performing for decades.
  18. J

    Trisha Greenhalgh on ME/CFS and Long Covid

    TG has reposted a thread from Twitter on Bluesky about the August Lancet paper on LC. I still can't get my head round the total disconnect between her hostility to ME patients and her support for the CBT-GET model for ME and her 'soundness' on LC. She also appears so ultra-sensitive to anything...
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