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  1. Seven
    Post

    Left out (Norwegian documentary on ME)

    That was exactly my issue. IV saline cannot be seen as placebo for ME/CFs when is one of the tools recommended for OI. They should of use sugar...
    Post by: Seven, Feb 22, 2020 in forum: General ME/CFS news
  2. Seven
    Post

    First time in remission with ketogenic diet

    I do so well in it, that it is my permanent state now (going on 2 years). I feel very much better in it. I can tell a huge difference on what I...
    Post by: Seven, Jan 7, 2020 in forum: Other treatments
  3. Seven
    Post

    Action CIND Webinar: "Why Working out Doesn’t Work" by Workwell Foundation

    Yes you will get PEM if you exceed your AT by certain time. When I got tested ( not By them but same concept) I was told to avoid going over the...
    Post by: Seven, Dec 25, 2019 in forum: General ME/CFS news
  4. Seven
    Post

    The Benefits of Oral Rehydration on Orthostatic Intolerance in Children with Postural Tachycardia Syndrome (2019) Marvin S Medow, et al

    This is simplistic, those of us who struggle w tummy, the oral solution is contra productive BecuAse gives you diarreah and then you loose more...
    Post by: Seven, Dec 5, 2019 in forum: Orthostatic intolerance treatments
  5. Seven
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019

    What are the tools at our disposal? Obviously talking will not cut it. 1) Can the New Lady (Karla) be taken to the (lets say medical board) but...
    Post by: Seven, Oct 10, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  6. Seven
    Post

    SMC: Advice for Researchers Experiencing Harassment

    Which news ???
    Post by: Seven, Oct 4, 2019 in forum: General ME/CFS news
  7. Seven
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    Dr Myhill’s complaint to GMC about PACE authors.

    THank you all. @Barry @NelliePledge @chrisb @Trish @Barry Superb work on the rephrasing!!!
    Post by: Seven, Oct 3, 2019 in forum: General ME/CFS news
  8. Seven
    Post

    Dr Myhill’s complaint to GMC about PACE authors.

    What does this means? Sorry not sure if it is my English.
    Post by: Seven, Oct 2, 2019 in forum: General ME/CFS news
  9. Seven
    Post

    Comments Simon Wessely revisits some of his early work on chronic fatigue syndrome, journal article (2012) Wessely

    What is the reasoning for sharing these links again, it just raises Search Engine (Google) ranking of the original paper, doing us a deservice....
    Post by: Seven, Sep 30, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Seven
    Post

    New Yorker: A Town for People with Chronic Fatigue Syndrome

    I wish one could post comments!
    Post by: Seven, Sep 4, 2019 in forum: General ME/CFS news
  11. Seven
    Post

    REC advice on PACE trial data changed in favour of release

    What drives me crazy, even if you don’t call it fraud, is people still think they are “stupid”, or that it was a mistake. Even though they have...
    Post by: Seven, Jul 27, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Seven
    Post

    REC advice on PACE trial data changed in favour of release

    OH dont worry about that we will raise the money, even if we have to do laying down car washes :woot::woot::woot::woot::woot:
    Post by: Seven, Jul 19, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  13. Seven
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    saves insurance Billions? In US there is a 2 year cap disability for mental vs non mental. So by supporting CBT they save having to pay for years...
    Post by: Seven, Jul 1, 2019 in forum: General ME/CFS news
  14. Seven
    Post

    Stretch marks

    Is one of the things on the criteria but you have to have other things, not just that. I have connective issues and I do have horrible stretch...
    Post by: Seven, Jun 24, 2019 in forum: General and other signs and symptoms
  15. Seven
    Post

    Orthostatic Intolerance in chronic fatigue syndrome, 2019, Garner and Baraniuk

    Not necessarily. I take 4 different drugs the beta blocker alone is not enough, but I do know other patients that it is enough. By the way,...
    Post by: Seven, Jun 6, 2019 in forum: ME/CFS research
  16. Seven
    Post

    Whitney Dafoe Updates

    Another thing is, as a community we have more power than we think. We are millions of plp, the day we decide to trend on tweeter, Facebook.... we...
    Post by: Seven, Jun 6, 2019 in forum: General ME/CFS news
  17. Seven
    Post

    Shared Microglial Mechanisms Underpinning Depression and Fatigue and Their Comorbidities - (2019) Filho, Macedo,Freitas de Lucena,Maes

    I forgot if it was a protein or what in the profile but I remember reading what was very low on depresión was high in ME or viceversa. Protein or...
    Post by: Seven, May 30, 2019 in forum: ME/CFS research
  18. Seven
    Post

    Jen Brea: My ME is in remission

    @Hip I am struggling w EDS like things, I am getting bones pop out like at least once a month, not fluro antibiotics for me but I do struggle...
    Post by: Seven, May 26, 2019 in forum: General ME/CFS news
  19. Seven
    Post

    How to distinguish between Dysautonomia and ME/CFS?

    I have both and they are different to me ( I had a bout of POTs when I was 15 to 20y without ME) so I can tell them apart. The main difference is...
    Post by: Seven, May 20, 2019 in forum: Post-Exertional malaise and fatigue
  20. Seven
    Post

    Questions for the CureME/UK ME/CFS Biobank team, what do you want to ask? [June 2019 Q&A]

    I saw on the last symposium that some like to know and organize the data by how long you have been sick. So what type sub typing and grouping are...
    Post by: Seven, May 7, 2019 in forum: General ME/CFS news
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