Search results

Would the remaining 10% capable of understanding this mechanism also easily see how mild exertion or even mere prolonged upright posture is enough to trigger it? To me this has always been a double hurdle: first you have to make people - or your doctor - understand how sick you feel during...

Sometimes in research papers OI seems listed almost casually as one symptom among others, but my experience of it is that it governs my whole life… The slightest daily activity I undertake must be interrupted on average every half hour to lie flat a few minutes, and those so-called "activities"...

Along those lines I'd add that a "thought" is not even some "thing" inside the brain, no matter how physical the latest psych rebranding claims it is (besides they seem to only pay lip service to the physical view while still believing full force in magical causality) - thinking is what you...

Indeed, this is the true "old wine in new bottles".

Maybe one of the many reasons why the mind-body dualism never ends is simply because "thinking" feels non-physical, immaterial to healthy people. You don't have to read any of the thousand and one faces of dualistic thought across history to adopt the view, it will come spontaneously, -...

Not sure if this will contribute much to all that has been posted here but I'll share some points I include in my personal little "fact sheet" I carry around (in my head). Whenever I try to explain PEM or crashes to people (including my doctor), I say that when I crash, I feel "sick" and that...

"a mismatch between what someone thinks they can achieve and what their bodies perform" - The only mismatch I know of is the exact opposite of Brian Walitt's, it's when I wrongly think my body can do MORE, not less. Which leads to a crash. He is so dead wrong about ME.

Who is Simon Wessely? He could be my next door neighbour! He could be some nobody you meet on the street. In that his "medical" conception of ME does not come from medical knowledge, it’s just a simple common assumption that tired people can push through their fatigue if they just tried. Or some...

Would brain hypoperfusion trigger glial activation?

What prevents me from pacing are my desires and needs, my urge to LIVE! What helps me most with pacing is remembering how much I hate the payback of not doing so, how I then feel sick, how it puts my life on hold. What change would enable me to pace more effectively? - Learning evermore from...

I would add "Temporary improvement" to the list above. I took LDN first at very low dose (.5 mg), I felt nothing, then over three months I increased to 1.5 and began feeling improvement, including less crashes and I was quite happy about that, the only side effects were those vivid dreams...

Superbly written and powerful in a way that reminds me of Laura Hillenbrand’s "A sudden illness". Even skeptics would find it hard to just belittle this story or doubt its credibility (provided they carefully read it first…).

These are Strauss' own words in a letter to Fukuda, for anyone here who would like to interpret them... Especially the "desirable outcome" part. edit: @Lilas, first link at the bottom of this link...

I appreciate this point very much. Weakness and "malaise" are completely distinct experiences. Researchers do not always seem to really get this about ME. If I only suffered from muscle weakness and had to carry a heavy object, I could just push hard and try to get it done nonetheless...

This argument is a complete contradiction: anything which is worldwide renders futile to investigate socio-cultural factors! The title is ironically well chosen - "a research agenda", indeed these authors sure have an "agenda"... (edit: if the authors mean that covid is worldwide but long...

If I could I would make the following suggestion to the authors for a follow-up paper: You folks really want to be useful to society and especially to sick people? Then leave CFS and Fibro sufferers who happen to be with violent partners alone, and instead offer their partners treatment for...

Not intentional, I think it's the champagne already working (I've started ahead of midnight, in case some new weird pause occurs) (I corrected before seeing your reply, sorry!)

Beautiful fireworks! And let's not forget champagne at midnight and to wish us all Happy New Guidelines!

"patients looking to make sense of a complicated illness experience are left to do so on their own" Indeed, and we've got some twenty thousand discussions here on s4me to prove this. And counting... (although we're not completely on our own… thank you Professor Edwards and the few others...

Since this brilliant tweet is from the very creator of Godwin's law, I suppose an application of that law could exceptionally be acceptable. So, here to comment on Sharpe's idea that we are the ones preoccupied with benefits rather than science, not them: