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  1. Chris
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    "a mismatch between what someone thinks they can achieve and what their bodies perform" - The only mismatch I know of is the exact opposite of...
    Post by: Chris, Feb 21, 2024 in forum: ME/CFS research
  2. Chris
    Post

    Who is Simon Wessely?

    Who is Simon Wessely? He could be my next door neighbour! He could be some nobody you meet on the street. In that his "medical" conception of ME...
    Post by: Chris, Feb 17, 2024 in forum: Psychosomatic news - ME/CFS and Long Covid
  3. Chris
    Post

    If you had to guess ME/CFS cause, what'd you say?

    Would brain hypoperfusion trigger glial activation?
    Post by: Chris, Jan 14, 2024 in forum: Possible causes and predisposing factor discussion
  4. Chris
    Post

    Pacing - what do you do/how would you describe it?

    What prevents me from pacing are my desires and needs, my urge to LIVE! What helps me most with pacing is remembering how much I hate the...
    Post by: Chris, Jun 9, 2023 in forum: Monitoring and pacing
  5. Chris
    Post

    Experience with LDN?

    I would add "Temporary improvement" to the list above. I took LDN first at very low dose (.5 mg), I felt nothing, then over three months I...
    Post by: Chris, Jan 9, 2023 in forum: Drug and supplement treatments
  6. Chris
    Post

    Guardian article: A catalogue of losses: what chronic fatigue took away from my life - by Mike Mariani

    Superbly written and powerful in a way that reminds me of Laura Hillenbrand’s "A sudden illness". Even skeptics would find it hard to just...
    Post by: Chris, Nov 28, 2022 in forum: General ME/CFS news
  7. Chris
    Post

    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    These are Strauss' own words in a letter to Fukuda, for anyone here who would like to interpret them... Especially the "desirable outcome" part....
    Post by: Chris, May 10, 2022 in forum: General ME/CFS news
  8. Chris
    Post

    Neurovascular Dysregulation and Acute Exercise Intolerance in ME/CFS: A Randomized, Placebo-Controlled Trial of Pyridostigmine, 2022, Systrom et al

    I appreciate this point very much. Weakness and "malaise" are completely distinct experiences. Researchers do not always seem to really get this...
    Post by: Chris, May 6, 2022 in forum: ME/CFS research
  9. Chris
    Post

    Editorial: A research agenda for post-COVID-19 fatigue, 2022, Wessely, Knoop et al

    This argument is a complete contradiction: anything which is worldwide renders futile to investigate socio-cultural factors! The title is...
    Post by: Chris, Jan 28, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Chris
    Post

    Intimate Partner Violence and the Risk of Developing Fibromyalgia and Chronic Fatigue Syndrome, 2019, Chandan et al.

    If I could I would make the following suggestion to the authors for a follow-up paper: You folks really want to be useful to society and...
    Post by: Chris, Dec 5, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Chris
    Post

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Not intentional, I think it's the champagne already working (I've started ahead of midnight, in case some new weird pause occurs) (I corrected...
    Post by: Chris, Oct 28, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  12. Chris
    Post

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Beautiful fireworks! And let's not forget champagne at midnight and to wish us all Happy New Guidelines!
    Post by: Chris, Oct 28, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  13. Chris
    Post

    Why Doctors Like Me Need To Read Chronic Illness Memoirs - An essay

    "patients looking to make sense of a complicated illness experience are left to do so on their own" Indeed, and we've got some twenty thousand...
    Post by: Chris, Sep 23, 2021 in forum: General disability topics and advocacy
  14. Chris
    Post

    Guardian Article on NICE pause

    [MEDIA] Since this brilliant tweet is from the very creator of Godwin's law, I suppose an application of that law could exceptionally be...
    Post by: Chris, Aug 30, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  15. Chris
    Post

    The Washington Post: My hope vs. myalgic encephalomyelitis, a chronic neuroimmuno illness

    Great discussion (especially on Severe ME Awareness Day). - With regards to the question about being hopeful or not, I see an alternative...
    Post by: Chris, Aug 8, 2021 in forum: General ME/CFS news
  16. Chris
    Post

    Psychological therapies. Discussion thread.

    I respecfully disagree with one small word here: "just"! Being supported by someone who listened (I like the italics), is to me not 'just " a...
    Post by: Chris, Feb 4, 2021 in forum: Psychosomatic theories and treatments discussions
  17. Chris
    Post

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Paul Garner first did not take post-viral conditions too seriously, then he took them very seriously and even found the neglect of medical...
    Post by: Chris, Jan 27, 2021 in forum: Long Covid news
  18. Chris
    Post

    Characterization of Post–exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (2020) Stussman, Nath et al.

    I’m often left with the impression that many ME researchers (and doctors) keep missing the essence of PEM even when studying it head on. It’s...
    Post by: Chris, Sep 20, 2020 in forum: ME/CFS research
  19. Chris
    Post

    Psychosomatic medicine and the psychologising of physical diseases

    Hume: " The idea of cause derives from the experience of constant conjunctions. - Kant: David, you would not apply the idea of cause to...
    Post by: Chris, Sep 19, 2020 in forum: Other psychosomatic news and research
  20. Chris
    Post

    Psychosomatic medicine and the psychologising of physical diseases

    It is hard not to view the term "psychosomatic" as a direct relic of ancient body/soul dualistic conceptions. What we call emotions,...
    Post by: Chris, Sep 19, 2020 in forum: Other psychosomatic news and research
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