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  1. Pen2
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    @Trish thank you for the articles. The first one I have but I'll include the second one too. I have learned alot recently So I am hoping my PCP...
    Post by: Pen2, Jul 22, 2018 in forum: General ME/CFS news
  2. Pen2
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    I have been reading (as much as I'm able) all your responses and it is overwhelming for me. I do not have enough cognitive function to be able to...
    Post by: Pen2, Jul 21, 2018 in forum: General ME/CFS news
  3. Pen2
    Post

    Stamina levels before ME/CFS?

    Wish me luck, I have to go to the store....:confused: I'm out of water and bread! I need that stamina I don't have right now...:nailbiting: :oops:...
    Post by: Pen2, Jul 10, 2018 in forum: General and other signs and symptoms
  4. Pen2
    Post

    Stamina levels before ME/CFS?

    Surprise surprise....right?
    Post by: Pen2, Jul 10, 2018 in forum: General and other signs and symptoms
  5. Pen2
    Post

    Stamina levels before ME/CFS?

    Me too!!! :dead:
    Post by: Pen2, Jul 10, 2018 in forum: General and other signs and symptoms
  6. Pen2
    Post

    Stamina levels before ME/CFS?

    @Dechi, I know how hard it was for you raising kids alone, working, school....etc. I too did the same. Did anyone else blame themselves? Ask why...
    Post by: Pen2, Jul 9, 2018 in forum: General and other signs and symptoms
  7. Pen2
    Post

    Stamina levels before ME/CFS?

    This is an interesting blog everyone has a different past in such different ways before ME. Thanks @Cinders66 . I worked 12hr shifts for 22years...
    Post by: Pen2, Jul 9, 2018 in forum: General and other signs and symptoms
  8. Pen2
    Post

    The Mighty: ME/CFS Patients and Allies Are Rallying Worldwide to Demand Better Treatment [Millions Missing]

    You know what @Andy?! Of course I want to be a part of this awareness...right?! Everything I try to do won't work for me! I tried to buy...
    Post by: Pen2, May 9, 2018 in forum: General ME/CFS news
  9. Pen2
    Post

    Article : Facebook halts medical data sharing plan

    I know that Facebook reaches alot of people but I don't trust it anymore. I'm not sure what to think about this. Patient confidentiality is...
    Post by: Pen2, Apr 6, 2018 in forum: Other health news and research
  10. Pen2
    Post

    Proposed 2019 presidential budget for CDC involves zeroing of CFS program

    @Webdog and everybody here, I'm so tired, I don't even know what to say. I want to march, advocate. So discouraging. I would share my story in a...
    Post by: Pen2, Mar 3, 2018 in forum: General ME/CFS news
  11. Pen2
    Post

    Let's talk wheelchairs and mobility scooters

    Reading all these responses are confusing for me. I just gave in and put an order in for a wheelchair. I came in this blog right when I saw it. I...
    Post by: Pen2, Feb 13, 2018 in forum: Home adaptations, mobility and personal care
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