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  1. janice
    Post

    Ed Yong: Articles on Long Covid, 2023

    I often feel that I have been stumbling around the ME Maze for a long time, made much more difficult as if I have one leg strapped up so having to...
    Post by: janice, Aug 25, 2023 in forum: General ME/CFS news
  2. janice
    Post

    mapMECFS: a portal to enhance data discovery across biological disciplines and collaborative sites, 2021, Mathur et al

    Does anyone know of any progress emerging from this approach?
    Post by: janice, Aug 9, 2023 in forum: ME/CFS research
  3. janice
    Post

    Medicine is plagued by untrustworthy clinical trials. How many studies are faked or flawed?

    Merged I noticed this piece in Nature last week which to me is yet another layer of problems, however I dithered about posting since I wondered...
    Post by: janice, Jul 22, 2023 in forum: Research methodology news and research
  4. janice
    Post

    EBV lab test

    I wonder if simply looking for results in blood has been done for so long now (over 30 yearsI believe ) plus with new technology surely there must...
    Post by: janice, May 18, 2023 in forum: Laboratory and genetic testing, medical imaging
  5. janice
    Post

    EBV lab test

    My understanding is that the CureME team at LSHTM are doing a longitudinal study on viral loads of EBV and HHV6 in saliva.
    Post by: janice, Apr 26, 2023 in forum: Laboratory and genetic testing, medical imaging
  6. janice
    Post

    Long Covid in the media and social media 2023

    I have tried uploading file but error of file too big. I’ll try smaller/lower resolution photo?‍♀️
    Post by: janice, Mar 5, 2023 in forum: Long Covid news
  7. janice
    Post

    Long Covid in the media and social media 2023

    I get access via Libby app and my MK library card. I have photos of both editors front piece and page 14 article. How can I attach here if of...
    Post by: janice, Mar 5, 2023 in forum: Long Covid news
  8. janice
    Post

    DNA sampling

    As far as I know the DEcode ME study is the first , biggest and imo the current best chance of getting some useful information. My understanding...
    Post by: janice, Oct 31, 2022 in forum: Laboratory and genetic testing, medical imaging
  9. janice
    Post

    News from Scandinavia

    I’m curious how many professional sports people who get glandular fever/ mononucleosis return to full recovery ie back to professional level...
    Post by: janice, Jul 8, 2022 in forum: Regional news
  10. janice
    Post

    EBV lab test

    This all sounds so familiar to me after starting my ME with GF back in 1999 and again 2000. Back then the diagnosis was made by Paul Bunnell...
    Post by: janice, Jun 2, 2022 in forum: Laboratory and genetic testing, medical imaging
  11. janice
    Post

    Unexplained post-acute infection syndromes, 2021, Choutka, Iwasaki, Hornig et al

    I wonder if NHS records of NHS lab results showing EBV/ glandular fever could be used to do a longitudinal study of those patient records to see...
    Post by: janice, May 25, 2022 in forum: 'Conditions related to ME/CFS' news and research
  12. janice
    Post

    DecodeME - UK ME/CFS DNA study underway

    That would be so great to have a look at this. Thank you for chasing. I keep getting tempted to sign back up with Facebook etc but usually I’m...
    Post by: janice, Apr 14, 2022 in forum: ME/CFS research news
  13. janice
    Post

    Who is Simon Wessely?

    I’m not on Twitter or Facebook. Any chance of outline of this discussion? I’m just hoping SW might have learnt something more than that old 2017...
    Post by: janice, Mar 31, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  14. janice
    Post

    Article: The coming battles over long-haul COVID-19 and long-term disability

    That's just so spot on. Brilliant. I'm embarrassed to admit that I've believed most of the BPS GET/CBT junk for years:banghead: Spent hundreds £s...
    Post by: janice, Dec 7, 2021 in forum: Long Covid news
  15. janice
    Post

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Now that the guidelines have been changed……. which is so awesome :thumbup::balloons::trophy@:party: and I am so grateful for all those people who...
    Post by: janice, Dec 3, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  16. janice
    Post

    Cerebral blood flow remains reduced after tilt testing in myalgic encephalomyelitis/chronic fatigue syndrome patients, 2021, Van Campen, Rowe, Visser

    Thanks Trish…..I see now that I had seen this back in May. My memory clearly getting wonky too.
    Post by: janice, Nov 27, 2021 in forum: ME/CFS research
  17. janice
    Post

    Cerebral blood flow remains reduced after tilt testing in myalgic encephalomyelitis/chronic fatigue syndrome patients, 2021, Van Campen, Rowe, Visser

    This set of authors produced another paper published . 2021 May 4;19(1):193. doi: 10.1186/s12967-021-02819-0. Deconditioning does not explain...
    Post by: janice, Nov 27, 2021 in forum: ME/CFS research
  18. janice
    Post

    Atrial fibrillation - some questions

    ****This is simply my own personal experiences and are in no way a suggestion as to how anyone else should treat such things.**** ************...
    Post by: janice, Nov 24, 2021 in forum: Cardiovascular and exercise physiology (CPET)
  19. janice
    Post

    CHRONIC FATIGUE SYNDROME (CFS) AND FIBROMYALGIA ARE VASCULAR DISEASE, 2021, Chang and Figueredo

    I’m sure there must be a microfluidics set up very similar to a continuous glucose monitor eg from Abbott Laboatories for diabetics . Surely if...
    Post by: janice, Nov 20, 2021 in forum: ME/CFS research
  20. janice
    Post

    UK ME/CFS and Long Covid clinics not offering guideline compliant care accessible to all

    I am totally shocked and saddened by this type of stuff. For both Long Covid and pwME. Equally I can't work out why I am that shocked.:rolleyes:
    Post by: janice, Nov 20, 2021 in forum: UK clinics and doctors
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