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Would it be fair to say that central sensitization CS never gets defined. If it was an objective thing it really ought not to be too hard to define and objectively measure. I'm assuming then that they can't.

That's quite a list of stuff. How on earth does 24 get answered. Retrospective assessment of past trauma is hugely biased by current circumstances and feeling state so that'll be dramatically overestimated. And what has that to do with the pt populations they claim to be studying.

I've completed my fundraiser @V.R.T.

Wow that's quite something. The lidocaine patches that help a subgroup of chronic pain patients are quite expensive so GPs can understandably be reluctant to prescribe as there is limited evidence base (lack of rct's). But GPs tend to continue if they are a significant help to their patients.

No placebo and subjective outcome measures. The changes on these scales are modest and patients score post intervention is nothing like healthy folks. Shame no placebo (saline would have been sufficient?) as a subset of patients with chronic pain/fibromyalgia benefit a lot from lidocaine...

Just seen this paper now. It popped up on my Research Gate as they had referenced me. It reads as though largely written by ChatGPT or similar. Not a critical review. Kinda, it's not great so we can keep going. Nothing much about the lack of underlying lack of psychological coherence of...

"Not news to us, these questionaries are used extensively in poor quality research that ignores the presentation of the disease." Spot on. Cheap, unhelpful, low quality work. Tells nobody anything useful. Likely misleading and can even be used to justify inaction and patient blaming for the...

Many thanks to everyone for publicising and donating to my sponsored cycle. I raised £3661 from 122 fabulous doners. It's on it's way to Norway.

@Jonathan Edwards @PhysiosforME I have shared this thread with BPS colleagues to alert them to this publication. Should get a chance personally to take a detailed look towards the weekend. Do keep me in the loop. Thanks.

Ridiculous nonsense. If they had demonstrated something objective like patients were more likely to stick with the long term medical care etc well at least that'd be something. I imagine it's quite difficult for multiple reasons to keep people in treatment long term. It's poor to see, for...

It's only contested by the psychosocial brigade. They developed and encouraged the contest largely it seems for professionals and career advancement. Patients, reality and science barely figure. Sad.

It's refreshing to see honest report of negative outcomes; however, there was no benefit or serious rationale for any if it in the first place. Such a sad waste of time, effort and precious research funding. Chasing fairy tales and rainbows. It was unlikely to ever have been helpful...

Just seen this update: Is this technically feasible? @Jonathan Edwards #ME #LongCovid #Lyme LONDON, Nov. 3, 2025 … Virax Biolabs Group Limited … an innovative biotechnology company focused on the detection of immune responses to and diagnosis of viral diseases, today announced that it has...

Cycle all done. Yay. Off home to warm up. It was a touch baltic. Ha ha. More than £3k raised. Yay. Thanks for helping me publicise. X

Hi @hotblack, Many thanks for your good wishes. It'll probably be a wee bit windy and largely in the wrong direction - ha ha - It'll be grand. I have my husband, Dewi, for support in our campervan. And I have plenty rest stops planned along the way. I'm looking forward. Yay.

Thanks @Jonathan Edwards

I've had an absolutely brilliant response to my fundraiser. I have upped my goal to £3k and I am still receiving donations. Please do share in your networks if you can. https://www.justgiving.com/crowdfunding/joan-crawford-810?utm_medium=FA&utm_source=CL I will be setting off on my cycle ride...

"....CP have an increased risk of developing sleep disorders, anxiety or depression, or even suicidal thoughts..." I cannot get passed this. Sleep disorders are ubiquitous in chronic pain...... it is not something they have increased risk of, it's part of it..... Most patients with pain are...

I haven't read the paper. Life is too short. You'd think work based on fishing and correlation would simply not get published in 2025. Nor get passed an ethics committee. Perhaps if sensible patients and patient charity representatives were co-opted routinely into study design and ethics boards...

Thanks @hotblack I'll have to up my game again