Joan Crawford
Senior Member (Voting Rights)
Many thanks @hotblack
Norwegian Fluge & Mella daratumumab Haukeland trial 'ResetME' now accepting international donations
- Thread starter Sasha
- Start date
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- Tags
- daratumumab fluge mella resetme
Joan Crawford
Senior Member (Voting Rights)
Many thanks @josepdelafuente
Over £1000 in a day. Very nice work @Joan Crawford.
Joan Crawford
Senior Member (Voting Rights)
So lovely to see.
I've upped my goal to £2000.
josepdelafuente
Senior Member (Voting Rights)
I've read through this attached Word document (available on the English-language version of the ME Fornet website ( https://www.me-foreningen.no/om-oss/stott-me-foreningen/me-fondet/english-me-fond/) ) a couple of times, and I've found it very encouraging!
I know nothing at all about Immunology, but reading this document has made me want to learn.
@Sasha do I remember correctly that you were learning / teaching yourself Immunology from somewhere online or a book somewhere?
This study really does seem (from their own Word document) like it could be a really good thing for us!
I'm definitely going to try to spread the word about it as much as I can, and put some of my energy into encouraging people to donate, and maybe finding a few rich people who are up for donating some big lump sums.
I know nothing at all about Immunology, but reading this document has made me want to learn.
@Sasha do I remember correctly that you were learning / teaching yourself Immunology from somewhere online or a book somewhere?
This study really does seem (from their own Word document) like it could be a really good thing for us!
I'm definitely going to try to spread the word about it as much as I can, and put some of my energy into encouraging people to donate, and maybe finding a few rich people who are up for donating some big lump sums.
Sasha
Senior Member (Voting Rights)
Great that you're willing to do some fundraising, @josepdelafuente! I was indeed mugging up on immunology but that's on pause. Meanwhile, though, I'd check what experts here on the forum say about that document - unless it's been checked by Fluge/Mella, I wouldn't necessarily trust the account of immunology there, any more than I'd trust a UK MEA account of it. But I take @Jonathan Edwards' word for this being a highly worthwhile trial.
There are some resources for learning about the immune system here: https://www.s4me.info/threads/learning-about-the-immune-system.43381/
And Sasha talks about that book here: https://www.s4me.info/threads/visual-media-for-learning-biology-medicine.39380/post-611356
hotblack
Senior Member (Voting Rights)
And already a third of the way to the new target! Nice work
Joan Crawford
Senior Member (Voting Rights)
Thanks @hotblackAnd already a third of the way to the new target! Nice work
I'll have to up my game again
Joan Crawford
Senior Member (Voting Rights)
I've had an absolutely brilliant response to my fundraiser. I have upped my goal to £3k and I am still receiving donations.Hello, I completed a similar fundraiser in 2016 raising funds for the Rituximab trial. Now that there is this promising clinical trial underway in Norway, it only seemed fitting for me to get on my bicycle again to raise awareness of the ResetME trial and fundraise.
Please do support me if you can. I'm aware many people with ME live with incredibly tight budgets so I am hoping you can support me by sharing on into your networks.
Information in the link below. It'll be updated in coming days as the ResetME team are redesigning their website and information into English.
Lots of love Joan x
Help raise £3000 to support promising medical research into ME – JustGiving Crowdfunding
Iʼm raising money to support promising medical research into ME. Support this JustGiving Crowdfunding Page.www.justgiving.com
Please do share in your networks if you can.
Help raise £3000 to support promising medical research into ME – JustGiving Crowdfunding
Iʼm raising money to support promising medical research into ME. Support this JustGiving Crowdfunding Page.
www.justgiving.com
I will be setting off on my cycle ride on Saturday morning. Weather not looking too bad - yay.
I shall try and post updates as I go.
Kitty
Senior Member (Voting Rights)
josepdelafuente
Senior Member (Voting Rights)
That's amazing Joan. Thanks so much for doing this.I've had an absolutely brilliant response to my fundraiser. I have upped my goal to £3k and I am still receiving donations.
Please do share in your networks if you can.
Help raise £3000 to support promising medical research into ME – JustGiving Crowdfunding
Iʼm raising money to support promising medical research into ME. Support this JustGiving Crowdfunding Page.www.justgiving.com
I will be setting off on my cycle ride on Saturday morning. Weather not looking too bad - yay.
I shall try and post updates as I go.
Jonathan Edwards
Senior Member (Voting Rights)
I have a protocol of never clicking
on posts. But sometimes I have to say: good on you!
Joan Crawford
Senior Member (Voting Rights)
Thanks @Jonathan EdwardsI have a protocol of never clicking
hotblack
Senior Member (Voting Rights)
Great work and thanks again @Joan Crawford Good luck for the ride this weekend. Could be a bit of wind around, hopefully enough and in the right direction to give you a helping hand rather than cause any trouble.