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Just to play devil's advocate... do we expect any doctors or scientists who *aren't* already interested or invested in Hyperbaric to spend the time and money to study it? Anyway, valid critiques aside, it's kinda cool that they successfully blinded this trial. Almost like this listened to this...

it is massively disappointing that Kaufman is lending his reputation to something like this :/

Don't have to read beyond the abstract to know that this is disgusting. And funded by the NIH!

Promoted on Facebook from the company that makes the supplement... I'm not really sure about this.

As someone with fatigue who has been prescribed ketamine in various forms…. I am skeptical.

I wish I had more to say, but I am currently about 50% certain that this combo is working for me after 6 weeks. See my previous threads for more info — I will post a real update after it has been a bit longer. Note that I probably have a history of tick borne illnesses, and do not fit CCC...

I also found these somewhat "standard" POTS recommendations to be pretty weak. Lots of companies marketing salt supplements and drink mixes on Amazon. Doesn't surprise me that there's not a lot of evidence.

Hopefully shouldn’t be too hard to self host an instance of one of those open source chat platforms. I don’t really care what the content is, I think the implications of certain (non illegal) communities being banned from these services is pretty grim.

Mostly that it came off a bit like it was either making the accusation that supporters of this program were paid actors, and not just desperate patients who felt like something indeed helped them. (Even if we on s4me are well aware that their recovery and the fact that they were taking maraviroc...

I believe that the cytokine testing is highly suspect until proven otherwise

This person has a point -- maybe the author should have tried interviewing more patients. A lot of focus on "Owen".

Solid article, I think it's pretty fair and I am glad it is out there. I guess I am an outlier. I have paid for their test, even paid for a consult, and I am currently on maraviroc/pravastatin. I don't really think it will help me, but my evaluation of the cost/benefit of trying it out for a...

Not a lot to report on from a scientific side of things. He seems very confident in his approach but I suppose we already knew that. He talked about some anecdotes of patients who got much better, very quickly. He talked about some upcoming publications. he talked about an “upcoming clinical...

I had one recently. Didn’t do anything. Seems like a big fad tbqh

Folks, it exists already: https://zeeboeffect.com/ just wait until it gets FDA approval!

I have no idea. I’m not very interested in maraviroc unless someone shows me some sort of better evidence that it works. I have done the cytokine tests though, and by biggest question is whether or not he has found a pattern in their “post Lyme” group, and whether or not I fit that pattern. I...

Check the creation date of that Twitter account and the number of followers. I wish I wasn’t so suspicious… anyway, I actually have an appt w Patterson soon, I plan to pick his brain about the whole post Lyme thing since that is of particular interest to me.

Even at my most pessimistic I at least can recognize that progress is far from linear... I just couldn't resist the opportunity for a joke

Only about another 400 years until we fully understand ME/CFS!

I really hope that they are doing more research into this drug. It really does seem to help many people, sometimes even significantly, but most report that the effect wears off. (It’s great that there are some people for whom this is not the case.) Of course we would all prefer a full cure. But...