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Mark A. Faghy, Rob C. I. Wüst, Daniel M. Altmann, Ruth EM Ashton, Sarah Barley McMullen, Rae Duncan, Andrew G. Ewing, Elke Hausmann, Sanjay Gupta, Mady Hornig, David Joffe, Binita Kane, M. Asad Khan, Micheal Natt, Rebecca Owen, David Putrino, Lindsay Skipper, Claire Taylor, Callum Thomas, David...

Zoe Sirotiak, Hailey J. Amro Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an impairing chronic condition characterized by exhaustion and worsening symptoms following exertion, often accompanied by pain, sleep issues, and cognitive issues. Historically, ME/CFS was not...

Article: Time to leave the ME/CFS diagnosis OPINION: The ME/CFS diagnosis causes more harm than good. In today’s debate, ME/CFS is portrayed as a distinct, clearly defined disease. It is not. by Live Landmark...

A member in my group asked about recovery and the AI (I am not sure which one) offered her the Recovery Norway stories among others, confirming her hope that yes, it is possible to recover...

Karen Bonuck, Qi Gao, Seth Congdon & Ryung S. Kim Abstract Background Five years since the scientific and patient communities first identified the syndrome now known as Long COVID, affected individuals lack treatments, and the US lacks population-based data on its disability burden and...

A review from Serbia from 2024 that supports the use of GET and CBT for CFS. Thread: https://www.s4me.info/threads/effects-of-graded-exercise-therapy-and-medical-care-on-chronic-fatigue-syndrome-2024-zli%C4%8Di%C4%87-et-al.49301/

This review is from 2024, so not so new. It is from Serbia, where they seem to have some relatively stronger patient advocacy going on, they have a patient organization, etc. But they also seem to have their own detractors.

Tamara Zličić, Darinka Korovljev, Tijana Šćepanović, Ivana Milovanović Abstract Purpose: Chronic Fatigue Syndrome (CFS) / Myalgic Encephalomyelitis (ME) is a complex condition with debilitating symptoms that significantly impact individuals, particularly those in the working population. This...

No, I don't know of any. I asked Gemini about this as it can read the Ukrainian-language internet. The answer is negative. Here is what it said: I also asked it about patient advocacy in Ukraine: I'm not surprised by this if this is indeed the case. It was exactly the same here in Hungary...

I have seen this, that S4ME is cultish, a couple of times now on Reddit, usually in the cfs subreddit. Almost always stated by people who came here with rather outlandish theories or doing "their own patient-led research" with the worst possible methodology and received some criticism, naturally.

Same here. He seemed to be quite sure it was glandular fever but also immediately sent me to do the test for EBV + CMV.

Full title: A Continuous Oral Regimen of High-Dose Cromolyn Sodium Is Effective for Some Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Patients With Mast Cell Activation Syndrome Maritsa E. Christoforou • Linda C. van Campen • Frans C. Visser • Carlton K. Lee • Samantha L. Lemmon...

Full title: Immersive virtual reality intervention to enhance cognitive-affective neuropsychological functions in post-COVID-19 condition: Research protocol and a case report Kinga Nedda Pete, János Tamás Varga, Zsuzsanna Valachiné Geréb, Orsolya Gőbel, Cecília Sik-Lanyi, Veronika Müller...

"We are providing an unedited version of this manuscript to give early access to its findings. Before final publication, the manuscript will undergo further editing. Please note there may be errors present which affect the content, and all legal disclaimers apply." Daniel Missailidis...

I'm not sure if anyone is still interested in this but anyway: I got the new Moderna vaccine earlier this week. I only had Astrazeneca and Pfizer before, with normal but pretty strong side effects (feverish, ill feeling, very fatigued etc). I asked AI about how the side effects of the new...

Anna Szente, Ákos Arató, Husamalddin Ali Alhour, Gábor Perlaki, Gergely Orsi, Szilvia Anett Nagy, Eszter Áfra, Barnabás Dudás, Dalma Tényi, Péter Barsi, Norbert Kovács, József Janszky & Gergely Darnai Abstract The long-term effects of coronavirus disease 2019 (COVID-19) are more pronounced...

Carruthers is the CCC.

Camille L. Birch, Brandon M. Wilk, Manavalan Gajapathy, Shaurita D. Hutchins, Gurpreet Kaur, Donna M. Brown, Tarun K. K. Mamidi, Kathleen S. Hodgin, Alp Turgut, Jarred W. Younger & Elizabeth A. Worthey Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a...

Fukuda.

Sławomir Kujawski, Hanna Tabisz, Karl J. Morten, Aleksandra Modlińska, Joanna Słomko & Paweł Zalewski Abstract Background An artificial intelligence (AI) pipeline was used to differentiate patients suffering from Chronic Fatigue Syndrome (CFS) from healthy controls (HC) based on...