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We pleased to say we have just launched this year's Walk for ME. It's now our 13th year, and so far we have raised over £238,000 for biomedical research into ME/CFS. If you know someone who would like to do a sponsored walk (or run, cycle, paddle or hop!) then please do get in touch! There is...

As NelliePledge said, reposting WfME posts on social media helps us a lot.

Thanks for posting this @Dolphin My energy has been taken up with other things so far this year, and I completely forgot to post! We are a bit thin on walkers this year, so if anyone knows someone who might be interested in doing a walk we'd love to hear from them. Also sharing our social media...

That was me as well. I used to need the electric blanket on for a good while. I’ve not needed it since trialing the cayenne though.

One of my most constant symptoms over the years has been the inability to keep warm. After reading there is some evidence that cayenne pepper acts as a vasodilator I’ve been trialing 1000mg supplements for the last month, and it actually does seem to have helped. I wouldn’t say that I am now...

Thank you all :)

Merged thread I'm a little late, but Walk for ME is running again this year, and so far the team target is an amazing £10,000! If you would like to donate you can still do so here: https://www.justgiving.com/team/walkforme2024 (Sorry I've not been around here for a while. My mum has some...

@ahimsa Thank you. The post is great It's an amazing amount people have raised, especially given the current economic situation. We're just running the Bluesky account as a Twix backup really, in case Twix goes goes caput. Mastodon and Threads are probably better for activism, but I believe...

A quick update. This year people doing a Walk for ME have raised an amazing £15, 667.61, which brings the total to nearly £211,000 raised in the last 10 years. We are also now on Bluesky if anyone want's to follow us there. https://bsky.app/profile/walk4me.bsky.social

Thank you @MEMarge I had a bit more of a tinker with my current machine and seem to have got it running better. I've yet to try sewing anything with it yet though. I've learnt a lot about sewing machines anyway!

Fingers crossed for your husband @Suffolkres. Glad you found one! @Kitty Some advice would be useful, thank you. I'll message you if that's ok, rather than clogging up this thread. My good news is I gave my sewing machine a service today and it's improved it a lot. It looked like a cam was...

@Midnattsol @lunarainbows @Kitty Thank you. I can't really justify a digital machine for my usage, but I quite often browse used sewing machine listings on ebay, and then get overwhelmed trying to work out which might be an improvement to my current machine

@Midnattsol & @lunarainbows Are they digital sewing machines you have? I do some occasional simple sewing, and have a basic machine from Lidl, but the pedal is snatchy and I can't get a slow speed even connecting it to a dimmer switch.

I don't know, looking at the disability criteria I can see it being that. I do think it would be more useful if they broke it down into working and non working groups though.

Thank you, greatly appreciated :) We are considering expanding to more social media sites, but as we all have ME it's a question of working out which platforms get the most traction for the least amount time and energy.

@Adam pwme Great video! Would you mind if we featured this video on the Walk for ME 'What is M.E/CFS?' page?

Merged thread New Walk for ME website is now live and on social media I'm really pleased to say the new Walk for ME website is up, and if you fancy checking it out and giving us a shout out on social media that would be very much appreciated! :) www.walkforme.co.uk We are now also more...

Thank you @Andy and @Hutan We are aiming to launch a new Walk for ME website by May, and also to try and get more of a presence on social media. If anyone knows of someone who would like to do a walk or event this year please do get in touch :)

@JemPD You might like to look at Samsung's Note line of smart phones that come with a very good styli. They support palm rejection, which means you can lean your hand on the phone screen but it only registers the pen input. Also both iPhone and Android support handwriting to text conversion if...

Would a tablet with a SIM slot be an option, if you don't need to be carry it on you? Or a keyboard for a smart phone? You can get ones that connect wirelessly that also have a track pad, or also you can just use a regular USB keyboard?