What is your current severity? I'm mostly housebound and spend a large part of each day lying down. I have the energy to prepare and cook simple...
I tend towards being too hot at night. The only thing that has worked to sort this out is using a very thin cotton filled duvet (from John...
I've had intolerance to alcohol ever since developing ME/CFS. Prior to getting ill I could drink moderately without problems. My intolerance...
I didn't feel able to answer. I experienced three or four lingering viral infections over a 5-6 month period. I recovered from them all except...
Hi @yME Just to note that I too was recorded as having very low oxygen levels while recovering from major surgery some 12 years after I...
Alcohol intolerance kicked in immediately after the infection that first triggered my ME and has remained ever since. I stopped drinking...
Thanks all. Yes. I'm sure your concerns are justified. But I'm choosing to address this problem, initially at least, as a technical matter. I've...
I recently registered on the Kings College Hospital/St Thomas Hospital patient app., which is called MyChart. It covers other hospitals and...
When you refer to a dietician from Norway, do you mean @Midnattsol ?
For me alcohol intolerance kicked in immediately after the infection that triggered my ME and has remained consistent since. If I drink a small...
Done.
Are these similar to the exercises outlined in David Berceli's book? He calls them 'Trauma Release Exercises' and there are YouTube instruction...
Just to echo what Mithriel has said. I also have this issue.
Hi @Lou B Lou I registered and signed up for updates on the Decode ME website https://www.decodeme.org.uk There's an explanation about...
Hi @Simon M I had a face to face appointment with Dr Weir last year. I don't know if he does video consultations, it would be worth ringing his...
Focusing on the DWP tribunal process. I am not a lawyer but I would imagine that, post the 2021 NICE guidelines on ME, there could be room to...
I think this is an interesting question. My own experience could be regarded as immediate or delayed onset post viral infection, depending on how...
I'm fortunate in having a GP who is broadly sympathetic. If I ever had to change GPs I would approach a new surgery well-prepared and with...
I guess some of this comes down to how you choose to classify things. I say that post Covid my ME has simply got worse. This worsening includes...
Hi ahimsa For me it's simply meant taking a step down the ME severity ladder after a suspected Covid infection in 2020. Interestingly I had a...
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