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  1. Revel
    Post

    Clare Gerada: influence on UK medical practice and ME/CFS management

    Edinburgh Fringe Festival 2024: [ATTACH]
    Post by: Revel, Jan 30, 2024 in forum: UK clinics and doctors
  2. Revel
    Post

    Earseeds, Acuseeds

    So, 6 Dragons falling over themselves to invest in ear seeds is NOT an endorsement of the product? Ok, then . . . o_O
    Post by: Revel, Jan 24, 2024 in forum: Other treatments
  3. Revel
    Post

    Clare Gerada: influence on UK medical practice and ME/CFS management

    Merged thread Clare Gerada interview on Radio 4 Dr Hammond interviews Clare Gerada on Radio 4, 5th December, in case anyone's interested: [MEDIA]
    Post by: Revel, Dec 5, 2023 in forum: UK clinics and doctors
  4. Revel
    Post

    Association Between Guillain-Barré Syndrome and COVID-19 Infection and Vaccination: A Population-Based Nested Case-Control Study, 2023, Arbel et al

    Hi @Mij. :) Unfortunately the AZ vaccine took me from moderate to severe ME and triggered the onset of new autoimmune issues. These days I'm...
    Post by: Revel, Oct 20, 2023 in forum: Long Covid research
  5. Revel
    Post

    Association Between Guillain-Barré Syndrome and COVID-19 Infection and Vaccination: A Population-Based Nested Case-Control Study, 2023, Arbel et al

    I developed GBS from AstraZeneca's viral vector vaccine.
    Post by: Revel, Oct 20, 2023 in forum: Long Covid research
  6. Revel
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    Remission Biome, "standing on the shoulders of giants": [ATTACH]
    Post by: Revel, Sep 12, 2023 in forum: ME/CFS research news
  7. Revel
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    Indeed. Also, some items on the full treatment list are not readily accessible in certain countries. It was asked if some items could be left...
    Post by: Revel, Sep 11, 2023 in forum: ME/CFS research news
  8. Revel
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    This feels somewhat akin to patient blaming. Like so many of us, I have self-experimented for decades. Now l'm broke, pretty much bedridden and...
    Post by: Revel, Sep 11, 2023 in forum: ME/CFS research news
  9. Revel
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    [ATTACH] Reporting 80% of participants are showing improvement.
    Post by: Revel, Sep 9, 2023 in forum: ME/CFS research news
  10. Revel
    Post

    Gupta amygdala training program for ME/CFS, FM and Long Covid - news and discussion

    Just looked up the Lead Researcher's Bio. Dr Loren Toussaint is a psychologist, regarded as a Christian "forgiveness expert" who has been a...
    Post by: Revel, Sep 7, 2023 in forum: Psychosomatic theories and treatments discussions
  11. Revel
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    The image is meant to represent "science and hope". Art being so subjective, this wasn't my initial reaction on first viewing, but each to their...
    Post by: Revel, Sep 4, 2023 in forum: ME/CFS research news
  12. Revel
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    Reading Twitter comments, glad I wasn't the only one somewhat disturbed by this latest Remission Biome image: [ATTACH]
    Post by: Revel, Sep 4, 2023 in forum: ME/CFS research news
  13. Revel
    Post

    dry eyes

    I have found dry eye relief from supplementing with Omega 7 (Sea Buckthorn Oil).
    Post by: Revel, Mar 10, 2022 in forum: General and other signs and symptoms
  14. Revel
    Post

    United Kingdom: Action for ME (AfME) news

    It's also somewhat ironic that the journalist managed to regurgitate the very kind of misinformed nonsense that AfME has vowed to be responsible...
    Post by: Revel, Jan 20, 2022 in forum: News from organisations
  15. Revel
    Post

    United Kingdom: Action for ME (AfME) news

    . . . such a shame The Scottish Sun journalist reporting this positive news story concluded her article with "treatments for chronic fatigue...
    Post by: Revel, Jan 17, 2022 in forum: News from organisations
  16. Revel
    Post

    Covid-19 vaccination experiences

    I rather wish I hadn't. The first shot of AZ back in March caused transient paralysis (doctor called it a Guillain-Barre type reaction), where l...
    Post by: Revel, Nov 22, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  17. Revel
    Post

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    If anyone has something to ask Fiona Godlee, here's your opportunity. Apparently we can ask her anything. [MEDIA]
    Post by: Revel, Nov 10, 2021 in forum: General ME/CFS news
  18. Revel
    Post

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    My bad, I didn't see the quote in it's entirety.
    Post by: Revel, Aug 24, 2021 in forum: UK clinics and doctors
  19. Revel
    Post

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    I didn't read his comment as being a list of therapies he was willing to try, but rather he was noting what he has heard pwME have been willing to...
    Post by: Revel, Aug 24, 2021 in forum: UK clinics and doctors
  20. Revel
    Post

    Covid-19 vaccination experiences

    Same here, @ukxmrv. Recovery from the transient paralysis, caused by the AZ vaccination, has stalled. Struggling with basic self care, the...
    Post by: Revel, Jul 8, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
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