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I'm definitely in the relapsing-remitting category. If I described my "best state of wellness" that I can achieve as my "ceiling", then my "ceiling" wellness is pretty poor, delicate and easy to bugger up next to a healthy person. The hole of worse wellness that my "ceiling" covers over is very...

@Andy You don't eat an onion for breakfast? :eek: :D

Welcome @Nathalie Wright :). I hope you find the forum useful!

I agree that wheat really isn't worth the trouble but .. onions and garlic? nooooooo! :cry: ha ha. I might experiment with cutting them out but they're my base for...everything :rofl:

That article has blown so many recent articles out the water. It's good to see some thorough and good reporting!

I like the idea, it's a good concept! I wonder how much reach this will get in terms of viewers etc.

@TiredSam I know what you mean about the cover art... I don't know if it's just me but I've noticed a lot of books or news articles on CFS/ME are "headlined" by an image of someone doing a face palm/head clasp of some description. I can't explain why but I just find something tacky/obnoxious...

It's always reassuring to see another ME/CFS sufferer who has found a way to live and has meaning in their lives! :) Gives me hope!

Consistent sleep hygiene and routine is something I really want to have but I have never been able to keep it up or control it; it can just go mental sometimes (like it is now!). I think this is because the rules are always changing with a fluctuating health condition. It's also inconvenient...

It's great to see so many responses, in spite of the poor website design (it's not immediately clear on how to submit feedback amongst other things). I shall certainly lend my experiences. I have been re-reading over my previous mandatory consideration letter... it shocked me all over again how...

Because psychiatrists only feel with their mind and are equally comfortable measuring with poetry as well as pathology: I'm sure it'll be an edgy beat poem about mood disorders and how it correlates to how under attack she is. :rofl:

I think Wessely accidentally gave the game away. No wonder psychiatrists get it so wrong if that's their approach to solving problems! Plus it sounds like they get confused between what's pathology and poetry. A bit worrying, really! lol What a hilariously pompous remark for him to make :rofl:

Hi guys, Do you have any go-to books or other resources for Gut health? I fear Gut health has become a bit of a buzzword and there's a lot of material out there. I'm concerned a lot of it will be built on bad science or watered down from a "main source", which many books seem to be! I'm going...

that's what she said on Twitter regarding the threat letter EC displayed in her talk.

@Dx Revision Watch If that's true then what they're doing is doing a good job, EC is getting royally roasted on Twitter right now, including by Jen Brea lol. I think there were tweets in the same vein made by Tedx Bristol about EC and have since been removed. I think I saw reference to them...

I'm a bit confused. I thought I would go to Twitter and check out some of the feedback that happened on there. I went to Tedx Bristol's Twitter and their timeline is full of today's events with introductory tweet's on who the next speaker is before they go on stage and then some quotes and...

Absolutely @Trish ! That's why i don't understand how she feels she can get away with saying this stuff. If these really are her ethical values then why is acting against them so vehemently. The summary of my big post was basically: she is a massive hypocrite. ha ha

signed! :) edit: I definitely understand @Esther12's concerns though. More funding is not the complete picture. Research into where we prioritise research and research standards need to be addressed too.

@Jan done! sorry, I didn't think of that. :)

I've just listened to her talk and here are my thoughts: She did a good job in the first half of her talk where she explained the general "landscape" of ME/CFS and what is needed for ME/CFS research to improve. However, I know she's focused on children with ME/CFS but she did make it sound a...