If I were to add a point of caution regarding using steps (which Im a big advocate for together with SF-36), it would be that it is still possible...
I only had a very mild flu. I coordinated a group for people taking it privately. It was my impression that the side effects people reported...
Haha. The problem with Cyclo is that it's not a cure, so patients would relapse. I would guess you can't take Cyclo for many years before it...
I dont disagree. If I were to guess the results weren't convincing enough as well.
Yeah, they didn't want to do a double blind trial because they thought the reported side effects seemed too big, especially concerns about the...
The paper is published now by the way for those that didn't know
Ive done it two times with a local anaesthetic, and it was ok. Without the local anaesthetic id imagine it would be horrible just by the sounds i...
PACE yourself, LIFT is coming.
Its hard to do when the psychosomatic-lobby has destroyed the public perception of ME/CFS. Also theres no sense of urgency for the politicians....
Its quite remarkable how little worthy research OMF has managed to publish taken into account how much funding they have gotten. People would be...
@Jonathan Edwards Do you have any thoughts about this research?
You`re right Simon, most of the research is pet projects for funding, and few seem to actually try to find out anything plausible. My main hope...
Another paper claiming effect when there is none at all
This is a ridiculous take in my honest opinion
The idea is that long lived plasma cells are involved (I dont know how effective Daratumumab is against them specifically)
I didnt, but the problem has just disappeared. I rarely get it now
This is actually a good point you raise here. Because there is a difference between the intensity of PEM I can get on any given day after doing...
I dont understand how one can look at this negatively, and I dont personally see the relevance of your points either Ash. Its a friggin charity...
I know, but they didnt use 15 years to start a phase 1 study. Hopefully something good will come out of all the funding to OMF, I`m just saying...
Ufortunately I have lost trust in OMF. I hear more talk than i read research, and ultimately that is all I can judge them on
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