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  1. Marky
    Post

    New German Trial for Rituximab? (High Dose)

    I only had a very mild flu. I coordinated a group for people taking it privately. It was my impression that the side effects people reported...
    Post by: Marky, Feb 8, 2024 in forum: ME/CFS research news
  2. Marky
    Post

    New German Trial for Rituximab? (High Dose)

    Haha. The problem with Cyclo is that it's not a cure, so patients would relapse. I would guess you can't take Cyclo for many years before it...
    Post by: Marky, Feb 7, 2024 in forum: ME/CFS research news
  3. Marky
    Post

    New German Trial for Rituximab? (High Dose)

    I dont disagree. If I were to guess the results weren't convincing enough as well.
    Post by: Marky, Feb 7, 2024 in forum: ME/CFS research news
  4. Marky
    Post

    New German Trial for Rituximab? (High Dose)

    Yeah, they didn't want to do a double blind trial because they thought the reported side effects seemed too big, especially concerns about the...
    Post by: Marky, Feb 5, 2024 in forum: ME/CFS research news
  5. Marky
    Post

    In vitro B cell experiments explore the role of CD24, CD38 and energy metabolism in ME/CFS, 2023, Armstrong et al

    The paper is published now by the way for those that didn't know
    Post by: Marky, Jan 24, 2024 in forum: ME/CFS research
  6. Marky
    Post

    In vitro B cell experiments explore the role of CD24, CD38 and energy metabolism in ME/CFS, 2023, Armstrong et al

    Ive done it two times with a local anaesthetic, and it was ok. Without the local anaesthetic id imagine it would be horrible just by the sounds i...
    Post by: Marky, Jan 12, 2024 in forum: ME/CFS research
  7. Marky
    Post

    The LIFT trial (OMF) - Pyridostigmine (mestinon) and Low Dose Naltrexone (LDN)

    PACE yourself, LIFT is coming.
    Post by: Marky, Nov 28, 2023 in forum: ME/CFS research news
  8. Marky
    Post

    Open Medicine Foundation (OMF)

    Its hard to do when the psychosomatic-lobby has destroyed the public perception of ME/CFS. Also theres no sense of urgency for the politicians....
    Post by: Marky, Nov 28, 2023 in forum: News from organisations
  9. Marky
    Post

    Open Medicine Foundation (OMF)

    Its quite remarkable how little worthy research OMF has managed to publish taken into account how much funding they have gotten. People would be...
    Post by: Marky, Nov 28, 2023 in forum: News from organisations
  10. Marky
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    @Jonathan Edwards Do you have any thoughts about this research?
    Post by: Marky, Aug 18, 2023 in forum: ME/CFS research
  11. Marky
    Post

    The current state of ME/CFS research, and its prospects

    You`re right Simon, most of the research is pet projects for funding, and few seem to actually try to find out anything plausible. My main hope...
    Post by: Marky, Jul 4, 2023 in forum: ME/CFS research news
  12. Marky
    Post

    Oxaloacetate Treatment For Mental And Physical Fatigue In (ME/CFS) and Long-COVID fatigue patients, 2022, Cash and Kaufman

    Another paper claiming effect when there is none at all
    Post by: Marky, Jul 2, 2022 in forum: ME/CFS research
  13. Marky
    Post

    An Etiological Model for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2011, Jason et al

    This is a ridiculous take in my honest opinion
    Post by: Marky, Jul 2, 2022 in forum: ME/CFS research
  14. Marky
    Post

    Open Pilot study in Norway - Daratumumab in ME/CFS

    The idea is that long lived plasma cells are involved (I dont know how effective Daratumumab is against them specifically)
    Post by: Marky, Jun 16, 2022 in forum: Recruitment into current ME/CFS research studies
  15. Marky
    Post

    Red-brown speckles on palm of hands and fingers

    I didnt, but the problem has just disappeared. I rarely get it now
    Post by: Marky, Apr 16, 2022 in forum: General and other signs and symptoms
  16. Marky
    Post

    Plasma metabolomics reveals disrupted response and recovery following maximal exercise in ME/CFS, Arnaud Germain, Maureen R. Hanson et al, 2022

    This is actually a good point you raise here. Because there is a difference between the intensity of PEM I can get on any given day after doing...
    Post by: Marky, Apr 12, 2022 in forum: ME/CFS research
  17. Marky
    Post

    Benefit Concert For OH Singer To Feature Cold Play's Chris Martin

    I dont understand how one can look at this negatively, and I dont personally see the relevance of your points either Ash. Its a friggin charity...
    Post by: Marky, Jan 3, 2022 in forum: General ME/CFS news
  18. Marky
    Post

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    I know, but they didnt use 15 years to start a phase 1 study. Hopefully something good will come out of all the funding to OMF, I`m just saying...
    Post by: Marky, Nov 27, 2021 in forum: ME/CFS research news
  19. Marky
    Post

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    Ufortunately I have lost trust in OMF. I hear more talk than i read research, and ultimately that is all I can judge them on
    Post by: Marky, Nov 25, 2021 in forum: ME/CFS research news
  20. Marky
    Post

    Neurochemical abnormalities in chronic fatigue syndrome: a pilot magnetic resonance spectroscopy study at 7 Tesla, 2021, Godlewska et al

    Why on earth would they include patients who took antidepressants. That clearly makes the results highly questionable
    Post by: Marky, Oct 11, 2021 in forum: ME/CFS research
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