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    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Holy—I can’t believe we waited 8 years for this. So, a bunch of the patients in the study ended up recovering completely, and most of them barely get PEM.. Makes me wonder if they're just studying people who can shake off a post-viral fatigue easier than others. You know, the kind who might get...
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    “Your Blood is Black”: My ME/CFS Experience with HELP Apheresis in Germany

    I (pwME) underwent four H.E.L.P. Apheresis treatments at the Apheresis Center in Cyprus. My blood appeared normal, and I experienced some benefits from the treatments. For instance, my resting heart rate decreased from 90-100 to 50-60 for about 18-24 hours after each session. Additionally, I...
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    Pathomechanisms and possible interventions in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS),2021,Fluge,Mella,Tronstad

    Øystein Fluge held a presentation at RME last week (in English) where he goes through the findings in this paper: YouTube: Pathomechanisms in ME/CFS - a model Fluge and Haukeland University Hospital in Norway are now recruiting up to six patients to a pilot study where they will target plasma...
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    Norway: Articles from TV2 about ME. Interviews with researchers as Fluge, Rekeland, Sommerfelt, Kielland and an interesting patient case

    Although the article doesn’t mention it specifically, I just watched the video report on Norwegian TV2 today and it showed she was given Rituximab (the Rx label was dated in 2016) which she paid privately, but it didn’t help her. Then she got cancer, and was treated with Taxol (Paclitaxel) +...
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